lumpchp Posted October 3, 2012 Report Share Posted October 3, 2012 So far, only diagnosis has been from neurologist at er as "failing ANS"Gp said I have to see specialist to get confirmed and accurate diagnosis. In the mean time, what can I do to ease symptoms? Here its what I experienceorthostatic hypotension- sometimes to the point of syncopeSupine hypertensionHeart rate increases with minimal activity- BAD when I stand upVagal response such as eating, going to bathroom, causes immediate svt arrythmiaBladder/bowel "issues"EXTREME fatigue, weakness, overall crappy feelingTemperature regulation issues, hands, and feet turn colors, go completely numb and cold, even in hot weather. Also cant tolerate heatAlot of headachesNot prego, but have not had a cycle for months- I do have endo, and believe its showing ugly face again.Chronic kidney stonesMajor back/body pain- all the timeDid I forget any?? Quote Link to comment Share on other sites More sharing options...
weathermandj Posted October 3, 2012 Report Share Posted October 3, 2012 My doctor recommended drinking lots of water and especially Gatorade. He also mentioned increasing salt intake for the orthostatic hypotension. I was told to rest and take it easy before they Dx'd my POTS and had me on some of the meds I'm on. Hope you start feeling better sooner than later. Quote Link to comment Share on other sites More sharing options...
lumpchp Posted October 3, 2012 Author Report Share Posted October 3, 2012 Thanks, I have been told about the water/salt increases, and am trying this. I guess I should invest in some gatorade, getting so sick of plain water...does anyone have experience with acupuncture? Gp wants to try this, I'm apprehensive of anything that will mess with my nerves right now. Quote Link to comment Share on other sites More sharing options...
lumpchp Posted October 3, 2012 Author Report Share Posted October 3, 2012 Oh yeah, forgot one thing, I have had RSD/CRPS (resolved) in the past following 2 seperate injuries, on my left ankle, and my left elbow (years apart) resolved after series of sympathetic nerve blocks, and LOTS of ptAlso, to my gp's amazement, i have had lab confirmed shingles 4 times in 4 years, 2 locations... It seems my ans has been "off" for a long time.It's amazing everything that can go out of whack with a "defective" nervous system Quote Link to comment Share on other sites More sharing options...
imapumpkin Posted October 3, 2012 Report Share Posted October 3, 2012 Try SmartWater also, it has electrolytes but none of the sugar in gatorade that might upset your stomach. I asked a similar question about acupuncture, and I know it is good for anxiety so i don't think it will negatively be messing with your nerves, but I don't know if it will do anything for dysautonomia. Quote Link to comment Share on other sites More sharing options...
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