leydengs Posted September 27, 2012 Report Share Posted September 27, 2012 I saw that there wasn't a support group in Nebraska so I would love to get one started, would anyone be interested? If you are interested please let me know!! Quote Link to comment Share on other sites More sharing options...
Mytwogirlsrox Posted September 28, 2012 Report Share Posted September 28, 2012 I'm not from Nebraska, but I was interested in your story. I saw in another post that your pots came on post pregnancy. Mind sharing your story? Quote Link to comment Share on other sites More sharing options...
leydengs Posted September 29, 2012 Author Report Share Posted September 29, 2012 I've had POTS since I was a teenager but it got a lot worse after having my daughter and my first ever flu shot. I kept my dizzy spells a secret because I was anorexic and bulimic so I just assumed it was front that (even though I had those spells before all of that). I used to over heat and pass out in games (soccer and basketball). I was in the hospital unable to walk after a bad flare up and just happened to get the only doctor in Nebraska that specializes in POTS. He diagnosed me about 2-3 months later. Quote Link to comment Share on other sites More sharing options...
Mytwogirlsrox Posted September 29, 2012 Report Share Posted September 29, 2012 Interesting! Thanks for sharing! Quote Link to comment Share on other sites More sharing options...
roxie Posted September 29, 2012 Report Share Posted September 29, 2012 I believe this blogger is from NEhttp://erinj0.blogspot.comAnd check out "Dysautonomia Friend Finder" on FB Quote Link to comment Share on other sites More sharing options...
leydengs Posted September 30, 2012 Author Report Share Posted September 30, 2012 Thank you i hate bananas!! Quote Link to comment Share on other sites More sharing options...
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