joyagh Posted August 29, 2012 Report Share Posted August 29, 2012 I saw my PCP today. My HR went from 60 to 85 on the TTT. When I do the stand up test I go from 60 to 99. When I do any activity it goes to 120-130. So, it's not "no sign of POTS" as the tests were interpreted, it's more like we're thinking mild POTS. I also have constant PCV's.My BP is also all over the place - anywhere from 90/50 to 135/89.I just started extended release Toprol today, 12.5 mg per day.any advice on what to expect from that particular BB's? Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted August 30, 2012 Report Share Posted August 30, 2012 I don't want to discourage you but of all betas I tried so far (toprol, inderal, zebeta aka metoprolol, propranolol, bisoprolol) toprol was the one I had the worst response to. I pretty much ended up being bedridden because of it. My bp plummeted, (my normal bp has always been around 90-100/50-70, and I've never had any issues with that) I was constantly exhausted, dizzy, drowsy, lightheaded, while still experiencing bouts of tachy.In my case it took a bit of trial and error to find the "right" beta (even now, on propranolol I have a lot of side effects and my list is only getting longer - guess it's time to pay a visit to my dr).One thing you might want to consider is that it might take a while for your body to adjust to the new med, but definitely let your dr know if something doesn't feel right.Best,Alex Quote Link to comment Share on other sites More sharing options...
Libby Posted August 30, 2012 Report Share Posted August 30, 2012 I'm on 100mg of Toprol XR a day. I love it. If I had to pick only one med to take, it would be my bb.I don't think I ever really had side effects from it. It's debatable if/how much it contributes to my Reynauds/acrocyanosis. Random things I've learned:Be careful if you use any sleep aids, even nighttime cold meds. I took some NyQuil a few years ago and it slowed my hr down more than I thought was possible. Scared the crap out of me. It will stick around in your system for a few days, even without the pills - fairly long half-life. On the unfortunate occasions when I've forgotten to re-order my prescription, it's usually not until the 3rd day that I really start feeling sick. Quote Link to comment Share on other sites More sharing options...
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