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Need Help From Some More Experienced Dysautonomia Folks


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Okay I think I panicked for no reason. My neurologist is big on the level of Orthostatic Hypotension I am dealing with and he said. "If we are looking at pure autonomic failure I am thinking Bradbury-Eggleston syndrome but I feel like I am getting ahead of myself" This is the same guy, bless his heart, who said I don't know much about this but I will research and learn with you. Ofcourse the phrases 'pure autonomic failure' and 'Bradbury-Eggleston syndrome' scared the living whahooie out of me but after looking them up are they not just other words for orthostaic hypotension?

I consider myself a smart lady but the brain fog and the docs who talk in circles and the fatigue when trying to research it all, well I am hoping those who are more knowledgeable can help me sort out what the terms mean.

Thanks so much.

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