louloutinks Posted April 27, 2012 Report Share Posted April 27, 2012 Hi all, long time no speak so I hope you are all well??I have been keeping note of my BP lately and have noticed that my BP specifically diastolic raises on standing but I am still getting HR increaseseg lay 100/68 hr 71stand 105/97 hr 124lay 98/66 hr 80stand 88/86 hr 135I have even had a bp of 159/151, 131/124 and other high readings whereas I am usually on the lower side.Does anyone know why this is? x Quote Link to comment Share on other sites More sharing options...
Anoj Posted April 27, 2012 Report Share Posted April 27, 2012 It looks like you have a narrow pulse pressure, which I think indicates low blood volume. There may be others on this forum who can explain better, but that's my thought. Good luck. Quote Link to comment Share on other sites More sharing options...
rubytuesday Posted April 29, 2012 Report Share Posted April 29, 2012 When I was first diagnosed with POTS my BP would plunge dangerously low and my heart rate would be very high. After a grueling summer drought, I got into cardiac specialist who told me I had POTS but now have OH (BP sitting was low normal/HR ok; BP standing dropped >20 but HR stayed about the same). I've been on Midodrine since and have sodium restriction as my ANS failure and EDS causes me to pool fluid/blood in my legs/feet. I need to keep the legs elevated as much as I can. My heart rate seldom gets tachy when the BP drops anymore, but I am on Rx to make me hypertensive. Although I still am not hypertensive, when I last saw my cardiac specialist, when I stood my BP jumped up. I keep a graph on MedHelp.org (not promoting any websites) that has a blood tracker. I enter my information and print the graph off monthly to take to my next cardiology appointments. It is up and down--all over the place. The cardiac specialist added Lexapro (again not promoting any drugs) which in me has helped to keep the BP a little higher (ie was running around 90/60 at night and now might run around 105/72 at night but it's knocking my heart rate from 70ish to mid-low 50s. I think that is one of the challenges in trying to find the best individualized fit for us. We all respond differently (but share so many of the same symptoms). Quote Link to comment Share on other sites More sharing options...
louloutinks Posted April 30, 2012 Author Report Share Posted April 30, 2012 Hi all Just posted this in another thread...... but last night I thought I'd take my BP whilst standing for a while - normally I just take it after I stand up and then a couple of mins later My heart rate usually just gets faster and faster, but last night I took it every minute.Laying was 106/73 hr 79stand 100/79 hr 1041 min 98/77 hr 1062 min 95/84 hr 1083 min 67/59 hr 87 - but at this point I had to lay down or I'd fall down!Laying 104/72 hr 64My BP slowly drops as above but usually as I said, my heart rate just gets faster and faster and always has a huge intitial raise as soon as I stand - whereas last night it was slowing down after a small rise with the BP dropping.Does this mean I am improving?!I have noticed the narrow pulse pressure too Anoj. Last year Ruby I would have a week here and there of really high BP readings but am not on any meds and was keeping a graph too. It was swinging from high to low and the graphs are great to get an instant visual.I am waiting a TTT and wish it would hurry but there is months upon months for the waiting list in the UK. Quote Link to comment Share on other sites More sharing options...
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