Monstrosity Posted April 1, 2012 Report Share Posted April 1, 2012 I've had slight tremors all over my body since my Pots/Dysautonomia started. So far Buspar, Effexor and Cymbalta have made the tremors a lot worse... I'm worried at what my doc is going to throw my way next will cause them to flare back up... If you get tremors what hasnt effected them, or has been a minimal effect for your condition med wise?I'll admit this is one of my scariest symptoms. I've been freaked out that I'm getting Parkinsons but my docs dont think so. When I first saw Michael J. Fox step forward with Parkinsons I think it left an ever fear of that disease. I remember thinking wow, thats a child hood hero of mine and now look at him... I admit he's an even bigger hero now battling Parkinsons and all he's done with it. Quote Link to comment Share on other sites More sharing options...
issie Posted April 17, 2012 Report Share Posted April 17, 2012 My first diagnosis was Parkinson's - it was wrong. I was given sinemet which ups dopamine levels and when that didn't work - they tried wellbutrin with lexapro. All these meds made me get significantly worse. I don't know if it was because of upping the dopamine levels or upping the noriepi levels. Since I have high noriepi levels - my guess is that for sure caused more issues. But, there is also question with some if we already have either too high levels or dopamine and possilbly seratonin. There has been discussion of both lines of thought on the forum before. All I know, is I don't need to up dopamine or NE levels and some of these type meds will do that. Since I was getting so bad with these meds - the doc then thought I had multiple system atropy and said I'd die in less than 10 years probably. But, that's when I went to Mayo and got my HyperPOTS diagnosis and the rest is history.If it makes you feel any better - I still have these tremors and they are worse when I get really tired or anxious - stress makes it worse. Back then though - it hardly ever stopped - now, it's just once in awhile. I think it's worse when I'm having the high NE levels - because, now that I'm trialing the clonidine and it lowers NE - things are not as bad with the tremors.Issie Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted April 17, 2012 Report Share Posted April 17, 2012 Are they SNRIs? Some POTS patients already have low norepinephrine reuptake. Quote Link to comment Share on other sites More sharing options...
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