bluegirl Posted February 22, 2005 Report Share Posted February 22, 2005 Hi again to you all and thanks for your replies to my message.The reason I had a pacemaker in 2002 is because I had a 5 second ventricular standstill - that means my heart actually stopped beating and I might have died if it didnt restart!! SCARY!! I have just been discharged from hospital after having spent 10 days in there when it was only a "day appointment"!!They left me sitting in a wheel chair for over 5 hrs and then wanted to do a lumber puncture but they couldnt get me out of the wheelchair as I had seized up!!I have had the lp and CT mylogramand loads of blood tests and am now awaiting all the results. The neuro bods have now referred me back to my neurosurgeon with a view to possibly fusing my back.Since being home I have been alone today for the first time, since coming out of hospital, and have already fallen over and had to crawl up the curniture to get up!The have increased 2 of my drugs by trebelling them overnight and my body is so confused. They say that I have to take these high doses (gabapentin/neurotonin) if I am to have surgery as it will help with the pain, but now my right arm feels like it doesnt belong to me.I am scared and frustrated but glad to know that I have this forum to rant and rave!!Has anyone else gone thru the mill like me; gone from consultant to consultant and given more and more drugs to take? Im sure its their mixing with each other (if you know what I mean)????Anyway, I just wanted you all to know that I am back home now and let Hayley know why I had a pacemaker implanted. Just as a matter of interest, 2 of the drugs I have been on have recently been withdrawn and I took these prior to my pacemaker being implanted and these withdrawn drugs are responsible for heart attacks/strokes and other problems. Does anyone know what Im talking about??! I want to go and see Prof Mathias again, but the last time I saw him he said he was concrned about seeing me because it was a long way for me to travel (even tho my husband takes the day off from work and drives me to London) and that we should deal with things by post. Do you think it is worth my cntacting him again to be reassessed since I was diagnosed by the tilt table with POTS in 2002.Anyway, best wishes to you all and thanks for your replisJulia Quote Link to comment Share on other sites More sharing options...
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