Mayo Clinic Question And Normetanephrine Question

[klcowley]

I am having the run around with doctors where I live. There is no one here that really understands autonomic dysfunction and I keep being told I am just a fainter. I really don't want to spend the money or time away from my kids to go to a mayo clinic doctor. Will they tell me anything else besides drink water, more salt, compression socks, lower stress, ect? Any info would be appreciated.

I also found in some labs that I have extremely low levels of normetanephrine and metanephrine and no one can really tell me why or what to do? Anyone else have this issue?

[potsgirl]

klcowley,

There has been a ton of information on Mayo Clinic from the past, so I would recommend doing a search on 'Mayo Clinic' in the upper right hand corner of this page. Rochester, MN is where the group of autonomic specialists are, but we also have a great doctor who specializes in dysautonomia in the M. Clinic in Scottsdale, AZ. How you had any tests done yet, like a tilt table test?

[klcowley]

No my docs keep saying they don't want to do one. I will do a search for the may clinic. Thanks for that info. Any help on the normatenephrine issue would still be helpful though. Thanks!