klcowley Posted January 27, 2012 Report Share Posted January 27, 2012 I am having the run around with doctors where I live. There is no one here that really understands autonomic dysfunction and I keep being told I am just a fainter. I really don't want to spend the money or time away from my kids to go to a mayo clinic doctor. Will they tell me anything else besides drink water, more salt, compression socks, lower stress, ect? Any info would be appreciated.I also found in some labs that I have extremely low levels of normetanephrine and metanephrine and no one can really tell me why or what to do? Anyone else have this issue? Quote Link to comment Share on other sites More sharing options...
potsgirl Posted January 27, 2012 Report Share Posted January 27, 2012 klcowley,There has been a ton of information on Mayo Clinic from the past, so I would recommend doing a search on 'Mayo Clinic' in the upper right hand corner of this page. Rochester, MN is where the group of autonomic specialists are, but we also have a great doctor who specializes in dysautonomia in the M. Clinic in Scottsdale, AZ. How you had any tests done yet, like a tilt table test? Quote Link to comment Share on other sites More sharing options...
klcowley Posted January 27, 2012 Author Report Share Posted January 27, 2012 No my docs keep saying they don't want to do one. I will do a search for the may clinic. Thanks for that info. Any help on the normatenephrine issue would still be helpful though. Thanks! Quote Link to comment Share on other sites More sharing options...
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