Guest Mary from OH Posted January 30, 2005 Report Share Posted January 30, 2005 Well, I'm exhausted. Marissa was up from 11pm to 6:30 am vomitting. I paged GI at about 4am to see what they wanted us to do. They were worried about obstruction, reaction to a new med, enterocolitis or another infection and of course dehydration from vomitting so much and also being on so many laxatives. They told we could bring her in then or wait until "morning" and let her try to get some sleep unless anything worsened. She had a slight fever. By morning, her fever had gotten to 102.6 (her normal is 96.8 like mine), but she had finally stopped vomitting. I paged GI again. They said to bring her in. They still had the same concerns, even though the vomitting had stopped. GI told me that they wanted abdominal xrays to R/O obstruction,labs, probably for us to do an irrigation there and IV fluids. I figured we'd probably be there all day and possibly be admitted for a day.ER trip- They ended up doing the xrays. Thankfully they said she didn't have an obstruction; however, she had "abnormal gas patterns" , which she has frequently. I forgot this can also be a sign of obstruction and didn't even question them on it or see if they had GI look at it . I was just SO tired. They NEVER did labs, but did finally get a little urine from her. They said she was mild/mod dehydrated but that she could drink at home. So, no IV fluids... They tried to do a strept culture, she didn't cooperate. Her fever spiked again while we were there. Only 3 hrs after Motrin. GRRRR Then, We were discharged and told to rotate tylenol/motrin every 3 hrs and return if worsens and continue her normal GI routine. They claim it's viral. How do they know that? They didn't even do cultures??!!She's barely eaten or drank. I knew she wouldn't and I told them so. She always does that if she's really sick. She's been sleeping since 3pm. I took a nap with them for about 2 or so hrs.... ARRRGGGHHHHSorry, I just needed to vent.Then, to top it all off. My husband asked about a birthday party we're supposed to go to tomorrow. They said it's fine as long as her fever is gone. Since I was up for half the night, I feel like crap. But, bless my husband he actually REALLY helped out a LOT!!! Right now is the normal time we usually take her upstairs to start doing her irrigation and get her ready for bed!! This is not good!! She has had less than 8oz of fluids all day, 2 bites of food (I'm not that worried about the food).I'm sorry, I probably shouldn't have even posted here, but I just get so upset. Thanks for listening! You guys are the best!! Quote Link to comment Share on other sites More sharing options...
Jersey Girl Posted January 30, 2005 Report Share Posted January 30, 2005 I dislike emergency room doctors, not personally but in general. A friend of mine was turned away twice in the same day at the ER recently and admited via ambulance the third time and now has just been transferred to a rehap center because she can't walk after being a a coma for a week. Can you arrange for her regular doc to see her? It doesn't sound like much fluid at all that she's had. Martha Quote Link to comment Share on other sites More sharing options...
Ernie Posted January 30, 2005 Report Share Posted January 30, 2005 Hi Mary,I am so sad and frustrated for you and your daughter. I just can't understand why doctors are so irresponsible or careless. I don't have any medical advice. I feel for you and your daughter.Ernie Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted January 30, 2005 Report Share Posted January 30, 2005 I'm sorry Mary,Yes you should post ---------you need to get all the support you can. How can those docs just let her go like that? She needed IV fluids---so the cycle doesn't happen again. How do some of these people get their medical degrees?This baffles me to no end. I have been through this, but in different ways. I was never so scared in my life when sent home with the same problem that brought me to the ER in the first place.I hope your daughter can get over this soon, and she gets her strength back.I'll be keeping you and your daughter in my prayers.Hang in there,Julie :0) Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted January 30, 2005 Report Share Posted January 30, 2005 Oh Mary not again!I can't imagine how Marissa gets through her day. What a strong little girl. How can I help? You know I want someone to find the best treatment plan so she can stay away from the hospital for a long time! How is she doing today? Are you managing to balance your own needs? Please do not let yourself go. I really really do know that we easily push our needs last when our kids/loved ones are needy but think about the price you may have to pay next week! Plan today on going to that pottery class on Tuesday night! Plan a "high tea" with a friend in your own home for next weekend while the superbowl is on! Oh what am I saying, even I can't do tea during superbowl! Okay, just get where I'm going with this and for pity sake don't get burn out!hugs, tearose Quote Link to comment Share on other sites More sharing options...
Guest Mary from OH Posted January 30, 2005 Report Share Posted January 30, 2005 Thanks everyone!!!At least the vomitting has still subsided. But she's still not drinking much. She's refusing to eat. She says her stomach hurts. Her fever is a little lower today. I called the GI on call again last night and expressed my displeasure of our ER experience. She didn't have much to say. ( I think she may be a Fellow or Intern or something).I can't see her regular GI or Dr since it's the weekend but I will call 1st thing on Monday. But, the ER or getting admitted would be the only way to get IV hydration. We'll see what today brings. Thanks for making me feel it was ok to post about Marissa here! Her health really affects my POTS and I really think I see so many signs of POTS in her too. The cardio agreed.Well, back to drinking and resting with Marissa. Quote Link to comment Share on other sites More sharing options...
Guest Julia59 Posted January 30, 2005 Report Share Posted January 30, 2005 Thanks for updating us Mary! Do keep us posted on her progress. Let us know what the GI Doc has to say about all this on Monday. You both should NOT have to go through this.Still praying,Julie :0) Quote Link to comment Share on other sites More sharing options...
corina Posted January 30, 2005 Report Share Posted January 30, 2005 Hi Mary,I'm very sorry to hear about Marissa having so much trouble. I hope the both of you feel a little better today. It can make me real mad the way ER treats people. Can't do much to help you, just let you know I'm thinking about the both of you,Corina Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 30, 2005 Report Share Posted January 30, 2005 Of course you should post here about this! I wish we could do more to help you and Marissa. It is scary when a child is vomiting that much because of course you worry about dehydration, as well as other serious problems. At least they could determine it wasn't a life-threatening problem. ER trips are the worst and often are not very helpful, sadly. I hope Marissa improves and can see her specialist soon. There does seem to be a nasty stomach bug making its rounds in certain places of the country, anyway. It has gone through my daughter's day care. She has vomited four times in the past two days and it is really ahrd to get her to drink anything. She is finally on the mend. Nothing compared to what you are going through, of course, but I can relate in that I know how much I worry about my child when she is sick. You are a very strong person. I have much admiration for you.Let us know how Marissa is doing.Katherine Quote Link to comment Share on other sites More sharing options...
Jaime Posted January 31, 2005 Report Share Posted January 31, 2005 That is so scary. My mom has had 6 bowel obstructions and none of them ever showed on an xray. ER docs just want to treat and street and sometimes I think that they forget to TREAT! I hope Marissa feels better soon, but that is very scary and the dehydration is also very scary especially if she is not drinking. I think they say viral if they don't know what it is. Good luck and I hope you can get some sleep too!Jaime Quote Link to comment Share on other sites More sharing options...
Guest Mary from OH Posted January 31, 2005 Report Share Posted January 31, 2005 We went to her PCP this AM. She concurred that it is viral. She also feels that Marissa is dehydrated, but not dangerously so. She told Marissa (showed her with her pop-up straw cup) that she had to drink 5 to 6 of those before going to bed tonight or she had to go to ER for an IV. Marissa started drinking right away. Hopefully it will continue. Here PCP said that the virus has slowed down her GI tract (very common apparently) which is something obviously she cannot afford. So, I have to talk to GI again to see how to proceed. Already had a call into them so that her GI could look at the xrays.Her irrigation did not go well last night. Her output was only 10 oz. Mind you, we put in OVER 28 oz in laxatives (this does not account for the stool that should be coming out too!!)!!Fun, fun, fun.I think her fever is gradually improving, so we're making SLOW progress! I'm ready for a LONG winter's nap!!! But, now I can't sleep because I have to wait for GI to call back!I'll keep you posted. Hopefully we're on the upswing?? Although I just had to give her meds for a migraine...I'm tired. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted January 31, 2005 Report Share Posted January 31, 2005 What troopers you both are. I hope you both get good rest and things improve soon. Hugs to you both.Katherine Quote Link to comment Share on other sites More sharing options...
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