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Non-Profit Fundraising For Dysautonomia/pots Research


Katybug

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Hi all! Does anyone know if there are any non-profits out there that do fundraising for Dysautonomia/POTS research? I ask because my doc says that since we POTSies are not really money-making for the hospital he works at, he does not receive a lot of funding. I just wonder if any of us have started to try to raise funds to support our cause. Any information is appreciated.

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I assume Vanderbilt, who has a dedicated research facility for dysautonomia, is doing all the research needed for POTS. Even though I haven't seem them make any progress in causes or treatment for the 5 years I've been paying attention, they are a dedicated dys. research facility. I just feel they need to widen their research views.

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