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Ernie

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Hi everyone,

I have a few members in my family who are seeing things that are not there for a few seconds. They know that the thing is not real but one member just got diagnosed with schizophrenia and I think that the shrink is wrong.

Are there some of you who are having some type of momentary visions of 1 second? You know how doctors are fast to put psychiatric diagnosis on us when they don't know what we have.

Thanks for your help.

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I occasionally see things out to the side of my vision that, after glancing, are not there. I think mine are due to floaters in my side vision.

If your family has any kind of money, I wouldn't hesitate to go to a functional medicine doctor. The more I read up on what imbalances in nutrients can do, the more I thoroughly agree with functional medicine that alot of "psychological" diagnoses are nutrient related. It gets very deep when reading about the metabolic pathways, and what happens if they are missing key nutrients or enzymems. And, they can come about from genetic influences and/or from environmental, such as absorption issues due to celiac disease. It seems that according to functional medicine, these things can be overcome or improved after finding out where the cycle is broken.

BTW, I plan on going to one as soon as I can pull together the money. I'm working through my insurance right now, as my large deductible is filled for the year.

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Guest tearose

Well, if they are otherwise of sound mind, I suggest you also consider things such as clairvoyance and clairaudience...also not in the realm of the psychiatric community so go find a certified Medium or Spiritualist Minister for guidance.

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hi ernie!

i've had trouble seeing things that obviously weren't there in the past. but always during nighttime and for more than a few seconds. i discussed it wih my neuro and he advised me to turn on the light to get rid of it which immediately helped. i think it had to do with low bp but i'm not sure, i DO know that i felt quite frightened. i also had times where i woke up not knowing where i was, what (time of) day, times where i didn't remember how to use my bed side alarm clock, washing machine etc.

not sure whether this helps, just thought to let you know these kind of things happen to perfectly sane people (thankfully ny neuro thought of me that way!).

take care,

corina :)

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Hi,

Temporal lobe epilepsy can also cause visions / hallucinations and is a condition that should be checked out. I don't know much about it personally Ive just read a few magazine / newspaper articles regarding it.

The visions / hallucinations can be present for varying amounts of time and feature anything. It can be quite difficult to diagnose - so you would need to see an epilepsy specialist who has other patients with this condition. When diagnosed it can be treated the same way as other types of epilepsy.

I hope this helps

Rach

just found this link http://en.wikipedia.org/wiki/Temporal_lobe_epilepsy

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My dear Friends,

I am not the one diagnosed with schizophrenia but my 14 years old nephew. His school sent him to a neurologist who tested him for epilepsy and the result was negative. Then they sent him to a psychiatrist where he answered many questionnaires and they diagnosed schizophrenia and depression. I agree that he is depressed but not schizophrenic.

I think I will follow your advise and have him see a GI specialist and add some nutrients.

I have so much trouble presently finding a doctor who will treat him for POTS and NCS. The psychiatrist does not even believe that he has it. He thinks that it is all in his head. I went 30 years with that kind of treatment. This makes me so mad. His father is diagnosed but the mother is in complete denial and keeps telling doctors that he does not have the disorder.

He has been diagnosed by my researcher on June 22nd but it is not written down yet because the researcher is waiting for the catecholamine and the blood volume tests.

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dear ernie,

i didn't think it was you diagnosed with schizophrenia! i know how much you care about your family and how hard you work on getting them a proper diagnosis. i'm very sorry to hear your nephews mom doesn't cooperate and actually seems to make things more difficult for her son. maybe she needs more time and/or things written down on paper so that it gets more "real" for her.

wishing you and your nephew all the best and a big hats off to you ernie, for working so hard on your family's well being!

love,

corina :)

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When I was younger, I suffered from severe depression and I also had hallucinations. I think it was mostly related to sleep-deprivation. I'd go through periods of insomnia, and periods where I'd have severe nightmares that wouldn't allow me to get any rest. Perhaps find out if your nephew is sleeping alright. My psychiatrist knows about the hallucinations, but has never even suggested schizophrenia.

I was suspected of having complex partial seizures, but my EEG came back normal. I found out that they did the test wrong, but it was a sleep-deprived test and I can't stay up all night anymore so I can't re-do it. Personally I think I do have some form of epilepsy. Maybe the test was done wrong in your nephew's case.

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Dear Corina,

I did not think that you thought I was the one diagnosed with schizophrenia.

I was just clarifying the situation so that members could understand better the situation. Please don't worry about it. Love Ernie.

Allene,

I know my nephew does not sleep enough because he falls asleep on his desk at school. Also the epilepsy test he did is just the regular day time (I know I was in the room with him). I go with him to all his appointments. He told me that when he sleeps at my place he has a better quality of sleep and he is less tired. We went to see the sleep specialist and he is suppose to have a sleep study within the next 6 months. He snores a lot.

Out of 31 members of my family diagnosed with POTS and NCS he is the only one diagnosed with schizophrenia. He is the only minor diagnosed also. I think that the doctors (they said they don't know dysautonomia) don't know what to do with him so they put him in the psych category. This can destroy his life, being stigmatazed has schizophrenic when you are not.

So, as you know might I have to go on the front and fight again with the doctors to get a proper diagnosis. When those psychiatrists have you in their paws they want to keep you!

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I'd get a second opinion if possible. And a third and fourth if you have to. Just keep looking until you click with someone. I've been through multiple psychiatrists in my short life, but after a dozen or so I finally found someone that really seems to listen and tries to understand and doesn't make assumptions.

Maybe also being matter-of-fact about the dysautonomia could help. As soon as he gets his diagnosis written down, carry a copy of a brief letter from the doctor describing the condition to your next psychiatric visit. Basically, leave no room for argument. If one psychiatrist cannot accept the letter as fact, then move on to another one. It might be hard, and it might take you a bit far from home (I have to drive nearly an hour every time I see my psychiatrist), but a good psychiatrist for your nephew is like having a good doctor for his dysautonomia.

And of course keep his thoughts in mind when settling on the right one! (:

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Hi Ernie. I have POTS and severe migraines and have lots of visual disturbances between the two syndromes. I don't know if you would call them hallucinations or not but one second it looks like something is there and the next second its gone. I have had more than one doctor suggest that I had mental issues before my POTS was diagnosed. It is good to know your nephew has you for an advocate. It is my understanding that a significant feature of schizophrenia is also hearing voices which you did not mention he experiences. I agree with the other members that you should seek at least a second opinion if not a third or fourth. Labeling a teenager with a mental illness is no small matter as you said and neither are the drugs that they will put him on. Good luck to both of you.

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