hilbiligrl Posted July 15, 2011 Report Share Posted July 15, 2011 hello all!Im getting ready to start mestinon..... I wanted to ask those who have taken it and who are on it if you have any advice for me while starting it. Are there any ways I can keep the GI issues minimal if possible, such as maybe taking slippery elm and DGL (not at the same time with the mestinon... i'll be doing them hours apart)..... My doc started me out on 60 mg 3 times a day. Anything tidbit of advice is needed!!! Thanks so much in advance!tennille Quote Link to comment Share on other sites More sharing options...
rach73 Posted July 15, 2011 Report Share Posted July 15, 2011 Hiya,I saw on neurotalk that one person with MG was crushing it up and letting it dissolve under their tongue and they were avoiding the gastro side effects.However they did state it tasted revolting!Others suggest taking it with food like dry crackers.Hope this helpsRach Quote Link to comment Share on other sites More sharing options...
sue1234 Posted July 15, 2011 Report Share Posted July 15, 2011 Can I ask which specialist is letting you try it? I have thought about asking for it for my slow gi issues. But, not sure which doc is going to be most likely to okay it. Quote Link to comment Share on other sites More sharing options...
hilbiligrl Posted July 15, 2011 Author Report Share Posted July 15, 2011 Can I ask which specialist is letting you try it? I have thought about asking for it for my slow gi issues. But, not sure which doc is going to be most likely to okay it.Actually, he's my primary care doc. I went through 8 years of no progress with my old and very critisizing doc, fired her and submitted my case to my new doc, as he is a rare case doc and no longer accepted patients. He went over my records for a good 6 weeks and called and said he would take me in (that was last dec). He is an integrative doc and treats the whole body, mind, spirit. He does conventional and non conventional treatment methods and he is also a professor at our local medical school. It has taken me many months to get him to agree to letting me try it. He had never prescribed it before, and since i tested negative to 2 MG tests, he didn't want to prescribe it. So, he got on here and read what those on here had wrote about their success with mestinon. He told me he would research it first and let me know. I got a call from my docs office this morning telling me that he looked into it, and it's worth a try and that it was already waiting for me at walgreens. I was persistant about trying it.... but i knew he needed to feel ok about it too, so I was patient and allowed him time to look it up and read about it on here. Im so grateful to have found him. Here goes my next experiement!tennille Quote Link to comment Share on other sites More sharing options...
Tachy Phlegming Posted July 15, 2011 Report Share Posted July 15, 2011 Nice when you can smile when you read a post on here. It may actually help GI issues (really helped me) depending on what your exact problem is. Just make sure to check whether it interacts with whatever you are trying.Tell us how it goes. I love (maybe hate is a better verb) stories where a patient can get a meaningless psych prescription in a hot second without even asking for it -- but (after having an idea of what is actually wrong) has to request over months the med for the condition from which he/she in fact suffers. If the med works for you, we'll have another story to remember ... Quote Link to comment Share on other sites More sharing options...
janiedelite Posted July 16, 2011 Report Share Posted July 16, 2011 When I was started on mestinon, I was told to take 30mg/day for a few days and work myself up in dosage slowly. Quote Link to comment Share on other sites More sharing options...
Tia Koul Posted July 16, 2011 Report Share Posted July 16, 2011 i was given 180 2x. very hard. then 180 1x a day. give it 3 weeks and you will feel better. don't panic, it will pass. and you may not have any issues at all! maybe keep some immodium handy or something that works for you for nausea, vomiting, diahrrea. good luck! you will hopefully see a change over the next several months.... give it your best shot! Quote Link to comment Share on other sites More sharing options...
corina Posted July 16, 2011 Report Share Posted July 16, 2011 i started on 10mg 3 times a day and slowly worked it up to 120mg 3 times a day. as i already had stomach problems my gp prescribed a stomach protector and it worked perfectly well together. good luck on trying, hope it will help you lots!!!take care,corina Quote Link to comment Share on other sites More sharing options...
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