Guest Julia59 Posted January 11, 2005 Report Share Posted January 11, 2005 Yesterday I went to see my PCP about finding another doctor --a neurologist to help me with my progressing neurological problems---both central & autonomic.I need someone to work with Dr. Bolognese in NY, as I can't keep bombarding him with questions.I asked my PCP why other docs aren't more aware of dysautonomia and chiari.I told him it angered me that there is such a mass ignorance. He said the conditions were rare and was defensive of the doctors.I told him it's not as rare as he thinks---because people are crawling out of the woodwork with these disorders---more so with dysautonomia. Then I told him if a doctor is not knowledgable about eaither of these disorders they need to admit it and be willing to learn. I also told him that many will blame the patient and accuse them of being a hypochondriac (spelling?), or tell them to see a psychologist. Then he said a lot of people with these disorders need a psychologist. I told him that psychological problems usually only develop secondary to the illness, and a lot of times it's due to the IGNORANCE FROM THE MEDICAL PROFESSIONALS-------> the very subject we started on.He looked at me and said it was something to think about. I told him, "I hope so, because the ANS controls all the involuntary body functions". He smiled an understanding smile and we moved on with my examination.Don't give up------just keep pushing............Easy to say----there are times when I get tired of trying, but that little conversation gave me some glimmer of hope.All those little glimmers add up to sunshine. Listen to the glimmers.Julie :0) Quote Link to comment Share on other sites More sharing options...
geneva Posted January 11, 2005 Report Share Posted January 11, 2005 Julia, good for you! Sometimes it is crazy we have to educate our doctors but sounds like you may have made some headway. Glad you left the office feeling better. Quote Link to comment Share on other sites More sharing options...
Ernie Posted January 11, 2005 Report Share Posted January 11, 2005 Congradulation Julia. Keep up the good work.Ernie Quote Link to comment Share on other sites More sharing options...
Guest tearose Posted January 11, 2005 Report Share Posted January 11, 2005 Good work Julia. We've got to train them slowly.Another item to add to our wish list: the DINET college of medicine.tearose Quote Link to comment Share on other sites More sharing options...
kristinp29 Posted January 12, 2005 Report Share Posted January 12, 2005 Good for you, Julia!!!!! Quote Link to comment Share on other sites More sharing options...
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