Jump to content

Saw my PCP yesterday----


Guest Julia59
 Share

Recommended Posts

Guest Julia59

Yesterday I went to see my PCP about finding another doctor --a neurologist to help me with my progressing neurological problems---both central & autonomic.

I need someone to work with Dr. Bolognese in NY, as I can't keep bombarding him with questions.

I asked my PCP why other docs aren't more aware of dysautonomia and chiari.

I told him it angered me that there is such a mass ignorance. He said the conditions were rare and was defensive of the doctors.

I told him it's not as rare as he thinks---because people are crawling out of the woodwork with these disorders---more so with dysautonomia.

Then I told him if a doctor is not knowledgable about eaither of these disorders they need to admit it and be willing to learn. I also told him that many will blame the patient and accuse them of being a hypochondriac (spelling?), or tell them to see a psychologist. Then he said a lot of people with these disorders need a psychologist. I told him that psychological problems usually only develop secondary to the illness, and a lot of times it's due to the IGNORANCE FROM THE MEDICAL PROFESSIONALS-------> the very subject we started on.

He looked at me and said it was something to think about. I told him, "I hope so, because the ANS controls all the involuntary body functions". He smiled an understanding smile and we moved on with my examination.

Don't give up------just keep pushing............

Easy to say----there are times when I get tired of trying, but that little conversation gave me some glimmer of hope.

All those little glimmers add up to sunshine. Listen to the glimmers.

Julie :0)

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

 Share

×
×
  • Create New...