lgtaylor100 Posted March 16, 2011 Report Share Posted March 16, 2011 Hi everyone -Does anyone know of a good POTS specialist near Philadelphia? I was diagnosed at a major teaching hospital in Philadelphia and put on a beta blocker. It helped to lower my heart rate but my major presenting symptom was fatigue. The doctor there thinks the fatigue is unrelated to the POTS and thinks it is something autoimmune. He says that fatigue is not part of POTS. I know from reading the forum that is not true. I have had labs for autoimmune disorders, had one positive ANA, but follow up ANAs have been negative. I also had a positive test for autoimmune hepatitis but my primary wants to redo it. He thinks it is a false result. I am symptomatic for Sjogren's but labs have been negative. I have CNS symptoms and cervical stenosis.I would appreciate it if anyone has a good recommendation. It is unrealistic for me to travel to Toledo, Mayo, or Vanderbilt. Quote Link to comment Share on other sites More sharing options...
heathmcev Posted March 17, 2011 Report Share Posted March 17, 2011 I'm gonna go out on a limb and guess that you were dx'd by a cardiologist? I was told the same thing by one who was so focued on heart issues he could understand how any other issues were related. I'm in Wilmington, DE and see a pots neurologist in Baltimore - Ramesh Khurana. Have to have a family member drive me but it's worth it for me. I know there's a guy in Media but can't think of his name (Goodkin??) - hopefully one of his patients will jump on this...best of luck with getting everything sorted out Quote Link to comment Share on other sites More sharing options...
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