kellieb Posted March 8, 2011 Report Share Posted March 8, 2011 Does anyone else have this? Is this brought on with Pots? http://www.bing.com/health/article/mayo-126527/Pseudotumor-cerebri?q=pseudotumor+cerebri&qpvt=pseudotumor+cerebri here is a artical of what it is. I have read so much in the past few days about pots. I remember seeing something about hypertension in your brain. but i dont recall what it is. I will be going tot he dr on Friday. I want to have all the info on hand. I forgot stuff alot. This is the only way i can actually remember. Quote Link to comment Share on other sites More sharing options...
Lovebug Posted March 8, 2011 Report Share Posted March 8, 2011 That is a very interesting article...thanks for posting. I have never heard of this but find it ironic that one of the causes could be Mono (which many of us have increased EBV levels). I've often wondered what is going on in my head b/c sometimes I can take my pulse just by counting the pulsating pressure in my head from a position change (either from sitting to standing, bending over, or turning from back to stomach in bed). I'm guessing this could have something to do with it b/c often my BP is normal when I check it during these times. Another symptom I have is central sleep apnea. I don't have this all the time (that I know of) but sometimes wake up gasping. Quote Link to comment Share on other sites More sharing options...
kellieb Posted March 8, 2011 Author Report Share Posted March 8, 2011 i often hear my heartbeat. also whooshing. Usually i can count my pules just my putting my hands over my ears. I also somewhat lose hearing. Just for a few seconds like the vision. Everything almost sounds like your in a stadium. Then this high pitched noise. Then things go back to normal. Besides the whooshing. I mainly get that when i am laying down. HAve your doctor check your eyes. They will notice optical never swelling. Mine was brought on by pregnancy. Just like everything else has been. I have never been diagnosed with mono. Although i do think i had it as a teen. I went around 6 months of sleeping. Ofcourse they chalk it up to "she is depressed" but i wasnt! i just literally had no energy. i couldnt even stay awake thru class. Quote Link to comment Share on other sites More sharing options...
Lovebug Posted March 11, 2011 Report Share Posted March 11, 2011 Thanks! I'll be going to my eye doctor soon and I'll have him check it out. I notice I get eye pain often but I don't really have worsening vision problems (as of yet). My ears do what you explain though. Quote Link to comment Share on other sites More sharing options...
HelpPOTS Posted March 11, 2011 Report Share Posted March 11, 2011 Omg i'm an 18 year old male and i had to have a lumbar shunt put in for this! I was actually getting surgery for My tethered cord and the spinal tap came back to high so they put it in. Weird thing is it didn't bring me any relief and I haven't noticed a difference. I always think i have too little spinal fluid in my head. I had mono when i was a child and I think i might have chronic sinusites so I don't know if they are connected somehow. Quote Link to comment Share on other sites More sharing options...
Lovebug Posted March 11, 2011 Report Share Posted March 11, 2011 Omg i'm an 18 year old male and i had to have a lumbar shunt put in for this! I was actually getting surgery for My tethered cord and the spinal tap came back to high so they put it in. Weird thing is it didn't bring me any relief and I haven't noticed a difference. I always think i have too little spinal fluid in my head. I had mono when i was a child and I think i might have chronic sinusites so I don't know if they are connected somehow.Wow...you're much to young to be experiencing any of this stuff!! Hopefully your symptoms will improve with time (it may take a while). I hope you feel better. Quote Link to comment Share on other sites More sharing options...
Bostton1 Posted March 12, 2011 Report Share Posted March 12, 2011 I also somewhat lose hearing. Just for a few seconds like the vision. Everything almost sounds like your in a stadium. Then this high pitched noise. Then things go back to normal.I've had this for the last few years it happens to me when I move my neck or arms sometimes, I don't get a stadium sound, just the hearing fades to about 20 percent. Im so glad that someone else has something like this. I don't know what dimming vision is but for the last couple of years when looking through one eye at a time, one is a lot more vibrant then the other. Quote Link to comment Share on other sites More sharing options...
kellieb Posted March 12, 2011 Author Report Share Posted March 12, 2011 I also somewhat lose hearing. Just for a few seconds like the vision. Everything almost sounds like your in a stadium. Then this high pitched noise. Then things go back to normal.I've had this for the last few years it happens to me when I move my neck or arms sometimes, I don't get a stadium sound, just the hearing fades to about 20 percent. Im so glad that someone else has something like this. I don't know what dimming vision is but for the last couple of years when looking through one eye at a time, one is a lot more vibrant then the other.The bright thing has just come to me recently. probally the Last couple months. But mine is white. anything with the color white overwelmes me for a second. ITs kinda weird. Im not sure if its related to the peusdotumor or the pots. That will be one of the first things i ask the specialist on monday. Also When im watching TV and the camera spins. i get dizzy. Or they start moving it fast in a circle. Very weird feeling. Anyone else get that? Quote Link to comment Share on other sites More sharing options...
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