Bostton1

I've had this for the last few years it happens to me when I move my neck or arms sometimes, I don't get a stadium sound, just the hearing fades to about 20 percent. Im so glad that someone else has something like this. I don't know what dimming vision is but for the last couple of years when looking through one eye at a time, one is a lot more vibrant then the other.

Hi, I was diagnosed with pots a couple of months ago and I have some symptoms that i never see anyone talk about but are driving me crazy. when I sit or stand, move my arms while sitting it feels as though the blood in my neck gets cut off on the right side. I get facial twitching that is rythmic to my heart beat. If I move my arms to type or slightly in front of me or turn my head slightly my hearing seems to fade out in one ear. My right hand also seems to go purple when using my mouse or standing. it also feels like blood is pooling in my face and scalp when sitting. My front neck veins feel like they jerk/pop when I move my neck or arms especially when sitting also. I don't know if its a thoracic outlet problem made worse by pots or what. all this worries me beyond belief. It seems to get worse after eating and about 8pm to 1am nightly, Im not sure if its because Ive been moving all day or what. I also seem to get a pressure pain in my left abdomen when sitting and/or laying on my left side, it can get real bad and feels like some type of pressure going on, like the blood cant get past that spot. I also get vein jumps in my arms and legs. any help or advice would be appreciated. Thank You, Cary

Im new here but it took me over 22 years to get diagnosed. It started my sophomore year in high school 1988. To be totally honest I was craning my head out my bedroom window trying to smoke pot (how ironic) it was real hard to do and all of a sudden I got tachycardia, I had to wake my parents and go to the ER with a heart rate of 220 lol. I had only did drugs once before and the doctors said I must be allergic, I never did them again. Whenever I would have a flare, I would always blame the pot on my problem, back then I though maybe it had changed my bodies chemicals or something. It took me years to piece together the whole neck tweaking thing. Then after that whenever I would tweak my neck (car accidents/turning wrong/opening my mouth too far etc.) It would be extremely noticeable for a few months or so and then I wouldn't feel it anymore, everyone including doctors would tell me it was anxiety. The only time I had problems with a racing heart etc was trying to run, after about a 1/2 mile my heart would just be going crazy. In 2000 it started again after leaning my head backwards and cracking my neck. I was diagnosed that time with PTSD from being in the military(even though I had only worked in an office, the doctors didn't believe me though.) This lasted until 2003 and I found out about POTS from google and stopped worrying about it. In November of last year I was passing a kidney stone and got worried I was having an intestinal blockage and pushed real hard about 50 times going to the bathroom, two nights later my POTS made a huge reappearance. This is the worst its ever been, but every time its been noticeable seems like the end of the world. I finally went to the ER a few weeks later, then a cardioligist who had to call 3 other cardios to diagnose me. Its always been there, but not in a front and center fashion as during the flares I've had.