louloutinks Posted February 21, 2011 Report Share Posted February 21, 2011 Hi I have recently been diagnosed with ehlers danlos and POTS. Now when I was at the hospital, my HR rose by only 27 and my BP dropped slightly on the top number.I have had various readings from monitor at home, in which my HR can rise dramatically sometimes by 60/70bpm on standing.I have also noted that my BP can either go low to 87/30 or high to 150/92 or it can remain approx low normal. Are these up and down readings usual for POTS? I am new to all this and am rather confused.I have always had a low BP. But some of the readings are really worrisome - like 35/30 was my lowest and that did not seem possible so I took the monitor back and had it checked! I have rather odd readings like 67/60, 102/35 and then an odd 'normal' one thrown in around 120/80. It seems to me that when I can really feel my heart pounding when I stand, the top number of my BP is low - is this normal too?I didn't really have much of an explanation of POTS at the hospital hence I am sure I will posting quite a lot on this forum!!Since upping my salt/water I am waking up with really tight puffy hands and am not sure if this is ok either.Many thanks in advance, Tinks Quote Link to comment Share on other sites More sharing options...
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