jkapache Posted February 6, 2011 Report Share Posted February 6, 2011 Hello All!A friend hasnt been feeling good for awhile, and it seems the drs are not getting anywhere. Below is her response to how she has been feeling.... I told her she should ask her dr about doing a TTT, as this sounds similiar to me when i first got sick...... what are your thoughts? thanks for taking the time to read this! I feel dizzy almost all the time and it gets worst with physical activity. Also I have seen foaters it is avery strange feeling and they happen often in excercise. Right when I stand I get very dizzy then it subsides then gets worse the long I stand If I go fast upstairs i get very dizzy but normal stairs are ok. Also I feel the room spining quit a bit mostly laying down. Once I had it feel like it was rocking when i was on my bed. Also I had a couple dizzy spells that lead to fainting which I dont know exacty what happened. I just rember geting real dizzy and seeing black. As for meat I love it but i have been unable to eat it. My stomch has a hard time holding it down. When I read I feel myself rereading things 2 or 3 times to understand it and still some times not remebering what I read. Also my mind wonders when I read. I have a hard time focusing, and get bad headaches. i also sleep alot, and making it thru a day of school is hard, i come home and sleep for 14 hrs. Thanks of the knew Ideas I really appreciate them. I know im not a dr, but because we have all been in that 'boat' or still are, id like to help her if possible! Quote Link to comment Share on other sites More sharing options...
mwise Posted February 6, 2011 Report Share Posted February 6, 2011 I agree with you that she needs to see someone specializing in Dysautonomia ASAP. It is horrible to feel so sick and not know what is causing it. She needs to see her GP and ask to have a TTT along with getting her in to see a Neurologist and/or Cardiologist that is familiar with Dysautonomia. If she lives in Ohio, I would recommend Cleveland Clinic or Dr. Blair Grubb up in Toledo. I also heard if you live in Columbus, they have good doctors familiar with Dysautonmia too. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted February 6, 2011 Report Share Posted February 6, 2011 Has your friend had any kind of basic work-up from a doctor? I would think checking for anemia would be a good first step. Check for iron deficiency anemia and B-12 levels. Quote Link to comment Share on other sites More sharing options...
jkapache Posted February 6, 2011 Author Report Share Posted February 6, 2011 thank you for the replies! Yes Sue, she has had a bunch of work ups with a GP and has labs monthly, sometimes every 2 weeks, and they have checked those you mentioned. she was sick back in oct for awhile, then seemed to get a bit better, and in dec got bad again. back when she started feeling better, the gp said it was probably some virus, and they will never know cause... but now it seems that labs are all pretty normal, aside from low white and red cells, and high bilirubin. but i know that ive had years of labs, and nothing ever shows, or its so minimal they dont bother even addressing it! Quote Link to comment Share on other sites More sharing options...
sue1234 Posted February 6, 2011 Report Share Posted February 6, 2011 Oh, so your two posts are about your friend--she had low RBCs. How did the doctors explain that? How did they say that wasn't pointing toward anemia? Quote Link to comment Share on other sites More sharing options...
jkapache Posted February 6, 2011 Author Report Share Posted February 6, 2011 yep. lol- i dont know!! they have given her vitamins that have helped a bit, but there seems to be something bigger going on. ive recommended she go see a specialist, or have more tests done, like the TTT. but i wanted to be sure that i wasnt crazy, for thinking she needs to see someone else, or that it wasnt a big deal, what shes going thru. ik that anemia can cause alot of these problems too, but it doesnt seem that that dx is covering everything. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted February 6, 2011 Report Share Posted February 6, 2011 Yea, it sounds like she needs to see someone good, who can look at the whole picture. Quote Link to comment Share on other sites More sharing options...
lieze Posted February 6, 2011 Report Share Posted February 6, 2011 What about a hematologist?That is who I saw when I was anemic.I would think that they would want to investigate her low numbers.To try to find a cause. Quote Link to comment Share on other sites More sharing options...
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