jimells Posted January 17, 2011 Report Share Posted January 17, 2011 Two weeks ago I saw a rheumatologist. It was a seven-hour round trip drive to watch the doctor spend 20 minutes typing into his computer. Then he handed me a stack of lab orders and practically pushed me out the door. The physical exam lasted about two minutes: he watched me raise my arms. I had to check to see if I was in a doctor's office or on an assembly line. Still not sure which one it was.So anyway I finally talked to the doctor's assistant today. None of the tests show anything. I was told to see a neurologist -- it was a neuro who sent me to the rheumatologist ("I can't help you ... I don't know who can.") The assistant also said something about possible fibromyalgia, but the doctor has no intention of following up on this. Isn't fibro supposed to be one of 'their diseases'? Did he shove me out the door when he noticed I'm on Mainecare and therefore won't get much money from the state?Right from the beginning, before I went for the appointment I told the office staff I thought I had POTS. The doctor said he doesn't know about POTS, it's not one of his diseases, and made it clear he has no intention of finding out what it is, or if I have it.The assistant also suggested I see an endocrinologist. Do any of them know anthing about POTS? Is there even one doctor in the entire state of Maine that has heard of POTS?? Going out of state is not an option, unless I can find an institution that takes charity cases(yeah, right). I tried that route a year ago at the UMass hospital in Worcester Mass. The neuro might have actually tried to help me, but the institution made it impossible for me to follow up. I spent a year fighting with those people, even though I made it clear from the beginning that I am nearly destitute from the disease. I live on food stamps and $300 per month, from a part time job. I've been fighting with the Disability Denial Service for over three years.I tell every doctor I see that I think I have POTS, and to please confirm the diagnosis or, if I don't have it, what is my problem. They never evaluate for POTS, and they never really look very hard to find the problem. Must be all in my head. Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.