marthamoss Posted November 7, 2010 Report Share Posted November 7, 2010 There was a thread in August about "running out of gas". My 17 yr old son has had POTS for the past year. He manages his day by what he calls "dying" when he holds his arms and legs completely immobilized. they are not really paralyzed because if he has to, he can move them, but if he tries to move them when they are like that, he gets chest pain and shortness of breath. His arms and legs also feel stiff. He goes all day with alternating hours, one hour moving around and one hour totally immobile. I guess it's his way of recharging because if he moves around prematurely, he sets himself back with extreme fatigue. We have just been to Mayo to see Dr Fischer,and I was hoping he had seen someone with similar symptoms, but he hadn't. Just wondering if anyone has experienced anything like this- kind of a pseudoparalysis? Quote Link to comment Share on other sites More sharing options...
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