daisy Posted September 19, 2010 Report Share Posted September 19, 2010 Hello,I am looking for a few volunteers to help me with a couple of things. First, I write the meet the member column for this site and am looking for people who would like to be profiled. It's great to get your story out there and help to educate family, friends and others. You never know who you may help by telling your story :-) If you are interested in being profiled for the dinet newsletter, please send me a personal message.Second, I am working on an article for a children's magazine about what it is like for a teenager to live with POTS. I plan to profile a teen (or more than one) who suffers from POTS, explain what POTS/dysautonomia is and how it affects his/her life (friends, dating, school, etc.). I also plan to focus on what to do if you have a friend who suffers with a chronic illness. I am looking for anyone who may have a child who has POTS and would like his/her story told. This is a great opportunity to educate the younger generations! I will also be contacting dynakids.org but thought I'd check here as well.Thanks very much!!!! Quote Link to comment Share on other sites More sharing options...
juliegee Posted September 19, 2010 Report Share Posted September 19, 2010 Hi Daisy,I will ask my son. He's 17 and became ill at age 12. You are wonderful to be spreading the word about dysautonomia. Julie Quote Link to comment Share on other sites More sharing options...
daisy Posted September 19, 2010 Author Report Share Posted September 19, 2010 Thanks Julie! It would be great to profile Mack - I would love to write about a boy and a girl in the article! Hope all is well with you! Quote Link to comment Share on other sites More sharing options...
kjd111 Posted September 19, 2010 Report Share Posted September 19, 2010 Daisy - i could ask my daughter. I'm not sure whether she's what you'd be looking for as 60%+ of her problems started after a blow to the head. But, its definitely a dysautonomia problem, so maybe it would work for you.Kate Quote Link to comment Share on other sites More sharing options...
juliegee Posted September 20, 2010 Report Share Posted September 20, 2010 Hey Daisy- Mack said he'd be happy to answer some questions via E-mail- would that work? He really downplays his illness, but at the same time he thinks it's important to educate others about it. Let me knwo if you want his E-Mail address. Thanks-Julie Quote Link to comment Share on other sites More sharing options...
kjd111 Posted September 20, 2010 Report Share Posted September 20, 2010 My daughter Hayley would also be fine with sharing. Let me know how you would like to do that if you are interested. Quote Link to comment Share on other sites More sharing options...
daisy Posted September 20, 2010 Author Report Share Posted September 20, 2010 Thank you so much to Mack and Hayley!!! I would love to include them both in my article - it will be great to get a perspective from a guy and a girl.What I will do is put together some email questions and forward to them. If you could please send me a personal message with their email addresses, that would be great.Thank you so much!!! I am very excited to write this article Quote Link to comment Share on other sites More sharing options...
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