nooniegirl Posted September 12, 2010 Report Share Posted September 12, 2010 Hi I used the forum a while back when I was struggling to get a diagnosis. I am now an offical potsie and wondered if there are any London or UK people I could bombard with questions?? All help much appreciatd Jess Quote Link to comment Share on other sites More sharing options...
sj75 Posted September 13, 2010 Report Share Posted September 13, 2010 im a uk potsie and there are a number of us on here now. Im probably not the best person to bombard with questions as im still on a rather steep learning curve myself but i know a few of the others would be great for that.xx Quote Link to comment Share on other sites More sharing options...
DizzyMe Posted September 13, 2010 Report Share Posted September 13, 2010 Hi Jess,Haven't heard from you in a while but we PM'd a while back.Please feel free to bombard me, maybe able to give a little more help now further down the line!Mel. Quote Link to comment Share on other sites More sharing options...
sj75 Posted September 13, 2010 Report Share Posted September 13, 2010 it would be nice to have a list of potsies from the uk on here as i never know whos from where and the care is so different in the uk to the us. Im in the east midlands.x Quote Link to comment Share on other sites More sharing options...
Tanzanite Posted September 13, 2010 Report Share Posted September 13, 2010 I'm on the South coast of the UK and have had POTS pretty much my whole life but only suffered very badly with it for 5yrs and only diagnosed then too. Quote Link to comment Share on other sites More sharing options...
lauralulu Posted September 16, 2010 Report Share Posted September 16, 2010 Hi!I too used the forum when I was pre-diagnosis and found people to be extremely helpful. I'm in Derbyshire, UK. There's a facebook group called POTSUK started by a girl in Sheffield that's also helpful and friendly too. Quote Link to comment Share on other sites More sharing options...
sj75 Posted September 17, 2010 Report Share Posted September 17, 2010 yes, thats susan we met last year and she has been a huge help and friend to me.x Quote Link to comment Share on other sites More sharing options...
rach73 Posted September 17, 2010 Report Share Posted September 17, 2010 Hi,Im from the UK and I am in the Southwest. I am without diagnosis and struggling as I now seemed to have developed gastroparesis as well now. My main battle is that my GP doesn't believe Pots exists and that he believes your heart rate going from 80bpm resting to 135bpm on standing is completely normal. I bought the book the fainting phenomena and lent it to him, so I await his response.I am currently waiting for tests on the gastro symptoms.I find this forum so helpful its my lifeline and the only way that I know I am not going mad.Rach Quote Link to comment Share on other sites More sharing options...
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