appaloosatb Posted August 25, 2010 Report Share Posted August 25, 2010 My nutritionist suggested this possible drug, but it sounds too good to be true. Has anyone heard of or tried it, and what did you think? Here's the website she sent me: http://www.lowdosenaltrexone.org Quote Link to comment Share on other sites More sharing options...
issie Posted August 25, 2010 Report Share Posted August 25, 2010 I recently had read about this too. I think it might be worth a try. Anyone tried it? Quote Link to comment Share on other sites More sharing options...
Lenna Posted August 25, 2010 Report Share Posted August 25, 2010 My son tried it last winter. I too was very excited about it. He started slowly...and within about a week it made him very sick. It really ramped his POTS symptoms into high gear.Everyone with POTS is different. I don't mean to discourage anyone from trying LDN. My son is someone who has not been helped by Midodrine, Mestinon, Florinef, etc. so maybe he isn't a good litmus test for LDN. I had to shop around a lot until I found a doctor who would prescribe it for my son. I'm curious as to why your doctor felt that LDN will work for you. Please share that information with us. Good luck!Lenna Quote Link to comment Share on other sites More sharing options...
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