Jump to content


  • Content Count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About appaloosatb

  • Rank
  1. I've just started to work with a therapist to tackle my frustrations about how POTS changes my life as well as hopefully resolve PTSD caused by childhood trauma, which has resulted in insomnia, nightmares, and flashbacks for 20+ years. My therapist plans to talk to my doctor about possible implications of different types of therapy to see which will be the most helpful without causing enough stress to make my POTS symptoms flare up. I feel like it's a really difficult balancing act. The flashbacks and POTS symptoms mirror each other - tachycardia, arrhythmias, difficulty breathing, numb or tin
  2. My nutritionist suggested this possible drug, but it sounds too good to be true. Has anyone heard of or tried it, and what did you think? Here's the website she sent me: http://www.lowdosenaltrexone.org
  3. I don't know why, but the same thing happens to me. My symptoms are always much worse in the morning and best at night.
  4. Thanks for the information! I'm currently taking the following meds: Ondansetron 4mg - 2 in the morning, 1 in the afternoon, 2 in the evening for nausea Propranolol 20mg - three times a day Midodrine 5mg - three times a day Would any of these account for the new symptoms? I've also been having horrible leg cramps at night that wake me up, this has been going on for about two months now. The information on EDS is interesting. I'm so swamped in medical bills that I've stopped going to the doctor. My doctor doesn't return phone calls, she just has a nurse call me back and tell me to come in, but
  5. Lately my POTS has been flaring up (fatigued all the time, nauseous, lightheaded, heart racing for no reason). I've also had a new symptom: my joints crack all the time. Whenever I move, my hip or shoulders crack. If I turn my head, my neck cracks. Yesterday my shoulder cracked and I couldn't lower my arm all the way until it cracked again. Today I moved my head wrong, and now I have shooting pains running from my right ear down my throat. This has never happened before. Usually if my back or neck starts cracking a lot I go to the chiropracter, but I haven't had my hip or shoulder involved bef
  6. After going back to the doctor and finding out that I've lost 5-lbs in 2 weeks, she's switching me to Zofran. I couldn't afford it through a pharmacy so I'm waiting to get it through their prescription drug program. I really hope this works, yesterday I couldn't each anything and today all I've had was about half a packet of Lipton soup and some goldfish crackers.
  7. My doctor keeps telling me that POTS is just a temporary ailment and that it should go away on its own eventually, but it seems most people here have had problems for a long time. It it true that POTS can just disappear like it appeared, or am I stuck with this for life? I just read through the literature I got at the Mayo Clinic, and it seems to contradict itself. In one place it says that for most people the symptoms do go away with time, but then the two personal stories make this sound like a more chronic condition. My doctor also seems to think that if I can just exercise enough my sympt
  8. Thanks for the ideas! I haven't been online much to check in here because I've been so sick, but I do appreciate the suggestions. It's been a very frustrating weekend. Friday I was only able to eat some canned mushrooms sauteed in butter, pieces of carrot, and some microwave popcorn. I spent all night Friday to Saturday in the bathroom because everything that I DID manage to keep down seemed to go right through. I feel so weak because I don't think I'm getting enough calories. Saturday was a bit better. I was able to take in a little over 1000 calories, but then got sick again. Today I've had
  9. Hi, my name is Sara and I'm a 24yo female nonsmoker. I've always been moderately fit and very slim. I'm a professional dog trainer full time and also do dog grooming part time (I did grooming full time until I got sick). I've always had trouble with illness. Any time someone else got sick, it seemed like I would catch it and my symptoms would be worse than other people's. Last July/August, I got a really bad cold that turned into bronchitis. At one time I was coughing so hard that I had to go to the ER because I couldn't breathe, and later that week I coughed hard enough that I cracked a rib.
  • Create New...