Its Getting Worse...

[Kujiforo]

I feel like I am being electrocuted every day now. My brain feels hot then the electricity zaps to my muscles and they jump uncontrollably. With it comes a rush of "energy", yet I feel numb and week, but like my body wants to rush off. It isn't anxiety. It seems more to trigger when I go from sitting/standing to laying down. Laying down makes it worse,e specially when I am tired and want to sleep. My muscles physically jump. Family members touched them and said it feels like my body is trying to jump out of my skin. My head feels like someone is sitting on it when this happens. It usually happens out of the blue and tends to get worse if there is lightening/thunder/rain/damp weather OR excessive heat that day. And the weather has been horrible for the past two weeks here.

What is this?

Oh, and it also can feel like sometimes my skin is on fire from within. This actually leaves my skin dry and cracked and blistered! Something crazy is going on with me physically and I can't stand it. It makes me want to go jump a cliff sometimes! :\

[friday7]

I feel like I am being electrocuted every day now. My brain feels hot then the electricity zaps to my muscles and they jump uncontrollably. With it comes a rush of "energy", yet I feel numb and week, but like my body wants to rush off. It isn't anxiety. It seems more to trigger when I go from sitting/standing to laying down. Laying down makes it worse,e specially when I am tired and want to sleep. My muscles physically jump. Family members touched them and said it feels like my body is trying to jump out of my skin. My head feels like someone is sitting on it when this happens. It usually happens out of the blue and tends to get worse if there is lightening/thunder/rain/damp weather OR excessive heat that day. And the weather has been horrible for the past two weeks here.

What is this?

Oh, and it also can feel like sometimes my skin is on fire from within. This actually leaves my skin dry and cracked and blistered! Something crazy is going on with me physically and I can't stand it. It makes me want to go jump a cliff sometimes! :\

I'm not sure exactly what is going on , but I know the burning feeling from within.. My dad had Neuropathy with his diabetes. And I've had it in small doses..Since POTS has neurological symptoms it makes sense. Everything you've described does sound neurological. I'm not doctor though.

But also I know the heat has been affecting me terribly this year. Have you been out in the sun a lot? I also felt that burning thing in my face after spending the day or rather night in the heat watching an outdoor play. I was so sick and my face burnt as if it were sunburned..but it wasn't. It was also really dry. So I figured I was probably a little dehydrated.

I've felt little zips and zaps at different times , especially when my POTS was real bad and mostly while standing for too long in one place. But not as extreme as you are talking about, and not usually while laying. How are your electrolyte levels? Have you been to the doc?

[Kujiforo]

I haven't been in the sun, but if I go outside and come back inside it triggers it. :\

Also, my house doesn't have ventilation much so it can get extremely cold/hot/damp inside depending on weather.

The doctors won't treat me or even have a look. I went to the ER trembling from head to toe with excruciating headache. They wouldn't even check my head, just gave me pain meds (which didn't work) and pretty much said I was crazy. Healthcare is awful here if you don't have insurance. My mom went for a small headache and they took her right in and ran all sorts of tests.....because she has insurance. I go in feeling like I am dying and fainting all over the place, and they just send me home sicker than when I left without a care. Sometimes they just ask if I been taking drugs. I never touched a drug in my life.

I do usually get these at night when laying down. But lately they've been happening in daytime also. Like, right now, its hard to feel my head because so much pressure. And my muscles spasm in all directions on me. I'm trying to just ignore it but sometimes it gets painful. So I just sit and stare blankly trying to fight it off. i wish to God the doctors here understood and cared. Just having a tiny bit of relief would be so wonderful.

[friday7]

I haven't been in the sun, but if I go outside and come back inside it triggers it. :\

Also, my house doesn't have ventilation much so it can get extremely cold/hot/damp inside depending on weather.

The doctors won't treat me or even have a look. I went to the ER trembling from head to toe with excruciating headache. They wouldn't even check my head, just gave me pain meds (which didn't work) and pretty much said I was crazy. Healthcare is awful here if you don't have insurance. My mom went for a small headache and they took her right in and ran all sorts of tests.....because she has insurance. I go in feeling like I am dying and fainting all over the place, and they just send me home sicker than when I left without a care. Sometimes they just ask if I been taking drugs. I never touched a drug in my life.

I do usually get these at night when laying down. But lately they've been happening in daytime also. Like, right now, its hard to feel my head because so much pressure. And my muscles spasm in all directions on me. I'm trying to just ignore it but sometimes it gets painful. So I just sit and stare blankly trying to fight it off. i wish to God the doctors here understood and cared. Just having a tiny bit of relief would be so wonderful.

oh wow , well that makes things even harder. Even if you got up the dough to see a doctor , they'd probably want to do some tests and that would run into big money. I don't know much about getting care without insurance but maybe this might help:

http://findahealthcenter.hrsa.gov/

You might be able to get someplace to work with you..For instance I've saw this CFS specialist and they didn't take Medicaid. I had to pay up out of pocket, but they were very good about understanding me not having the money. If I went in for a visit they would take two checks totaling the whole fee. Then they would cash one , the month of my appointment, and then they would cash the second check the next month. The also gave me a reduced fee.

The weather can really makes things worse though. I get sick from the heat and I've been hoping for rain to cool things off. Then the rain came and I got bad sinus headaches that made me sick. I wish there was some special insulation you could put in your home to keep the weather from affecting you.

I would recommend writing things down daily. For instance you said if you go outside and come back inside it triggers it.

Stuff like that. Like what the weather is like, how you feel. How you feel after doing an activity, or eating different foods..Maybe then when you can get to a doctor you can have some info that might help them figure out what's wrong. Or you might just start to understand it yourself.

[nmorgen]

I feel like I am being electrocuted every day now. My brain feels hot then the electricity zaps to my muscles and they jump uncontrollably. With it comes a rush of "energy", yet I feel numb and week, but like my body wants to rush off. It isn't anxiety. It seems more to trigger when I go from sitting/standing to laying down. Laying down makes it worse,e specially when I am tired and want to sleep. My muscles physically jump. Family members touched them and said it feels like my body is trying to jump out of my skin. My head feels like someone is sitting on it when this happens. It usually happens out of the blue and tends to get worse if there is lightening/thunder/rain/damp weather OR excessive heat that day. And the weather has been horrible for the past two weeks here.

What is this?

Oh, and it also can feel like sometimes my skin is on fire from within. This actually leaves my skin dry and cracked and blistered! Something crazy is going on with me physically and I can't stand it. It makes me want to go jump a cliff sometimes! :\

Hi Kujiforo,

I have very similar symptoms. The muscle jumping I call spasms/tremors. Mine have a very high frequency(speed). They mostly occur in my legs and sometimes in the trunk of my body. I usually have them when I am laying down trying to fall asleep, or they will wake me up from sleep they get so bad. I always try to stretch before I go to sleep. You can also try calcium and magnesium(if you don't have low blood pressure problems). Here are links to previous discussions on tremors that might help you. http://dinet.ipbhost.com/index.php?showtopic=15607&hl= http://dinet.ipbhost.com/index.php?showtopic=15450&hl=

I get the occasional burning in my face and my toes. I was diagnosed with small fiber neuropathy and I think that the burning pain and the electrical pulses are both due to the neuropathy.

I hope your symptoms improve and you start feeling better.