Minty Posted June 28, 2010 Report Share Posted June 28, 2010 I have EDS and have been diagnosed with POTS but the only treatment options I have been offered are florinef and midodrine. I think the assumption is that because I have EDS the POTS must be caused by slack vascular tone. I have anxiety and what feels like adrenaline surges at 4am every day. I'm not sure what the symptoms are of hyperadrenergic POTS (is there something good to read on the web?), but the little I've seen on here makes me wonder if I have it. Is there anywhere in the UK I can get tested? Thanks. Quote Link to comment Share on other sites More sharing options...
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