sue1234 Posted June 18, 2010 Report Share Posted June 18, 2010 Okay, I am on my second day of feeling like my limbs are constantly feeling "vasodilated". It makes me feel even more lightheaded and hot. I am having to turn my a/c down more to see if it can counteract the dilation with a little constriction.I had read here and there about MCAD, along with what some of you that have it had said, and now I am ready to get serious to see if that might be my problem. I would like to relate what might be some of my symptoms as a possible connection, besides the OBVIOUS POTS itself:--reddish areas on one arm and leg, not raised, that get intense if in sun or hot--heat just makes me feel faint within 5 minutes, assuming it's just compounding the dilation--before POTS, excercise would make my hands swell--facial flushing when nervous, hot, or sometimes for no reason(checked for carcinoid-negative)--lots of other stuff I just attribute to POTS(all the usuals)What is a good starting test, cheapest, as I may just order it myself. I went to the masto. society, but they don't have a forum. Is there one out there somewhere? Quote Link to comment Share on other sites More sharing options...
flop Posted June 19, 2010 Report Share Posted June 19, 2010 Here's a link to a mast cell disorders forum. Mack's Mom kindly sent me the link a while back. I don't post there but have read through some of the posts. Hope it helps answer some of your questions:http://mastcelldisorders.lefora.com Flop Quote Link to comment Share on other sites More sharing options...
sue1234 Posted June 19, 2010 Author Report Share Posted June 19, 2010 Thank you, Flop, for giving me that information. As I've learned from being on this forum, first-hand information is much more valuable than any article on the subject! Quote Link to comment Share on other sites More sharing options...
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