Orthostatic Tilt Training

[miranda]

Does anyone do this ?

I have for few days and its tough , nearly passed out.

[TXPOTS]

Does anyone do this ?

I have for few days and its tough , nearly passed out.

Yes, I just started last week. It is so hard!!! I am supposed to be doing a 70 degree angle twice a day for 10-15 minutes. My record is 5 minutes. My legs turn blue and purple in one minute. It bothers my knees a little, so I am a little concerned about this because I don't want to put a kink in my exercise regimen. I don't actually have the table, so I am using a bed wedge and pillow against a wall. I have also raised the head of the bed, and I wake up with sore legs. I assume this is from pooling.

[bkweavers]

Are you doing this at home or at a physical therapy place? I'm curious because we're going to see if vestibular rehab would help our daughter with her dizziness. Her physical therapists recommended that she try this rehab and I think part of it may be tilt table training.

Brenda

[miranda]

Txpots, It is Interesting that you have been prescribed this training from the doctors ,

I read about it online and decided to give it a go. The first time I did I was wearing compression stockings ,lol. (I wondered why I did so well).

Last night without the stockings I lasted 15 mins , came over really faint and sick , got down on the floor and my heart was racing fast. My feet also had lots of pins and needles .

Your method sounds more technical than mine , I just stand with my feet 7 inches from the wall and lean back onto my shoulders , I might give the cushion idea a go.

teachr4k , I would be interested to know what therapy they give your daughter , dizziness is a big problem of mine.

thanks for the replys

[potsgirl]

How do you set this up at home?

[TXPOTS]

I think the ideal way would be to rent a tilt table or go somewhere this is offered. I know my POTS specialist offers this, but I am hours away. I use a bed wedge and pillows and approximate a 70 degree angle. A mattress against a wall may be easier.

[futurehope]

teachr4k,

Before I knew I had POTS, or maybe before I had it, I was sent to the Hopkins "dizzy clinic" and given exercises to train my body. I wonder if this is the same as the "vestibular exercises" you are referring to?

The exercises I did helped my body adjust to motion, head turning without feeling as dizzy. It obviously had nothing to do with orthostatic intolerance.