halalicia Posted December 9, 2003 Report Share Posted December 9, 2003 Hello, I am confused, Is neurocardiogenic hypotention syndrome the same as Pots? ?????? I was diagnosed with neurocardiogenetic hypotention syndrome! But over half of pots symptoms I have! Please help, Very lost! Halalicia Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted December 10, 2003 Report Share Posted December 10, 2003 The short answer is yes and no. Sorry to be confusing, but there is still some debate with regard to the *experts* about that. I happen to have a dx of BOTH. Go figure! If you haven't read through the info on the main DINET site, you may want to do so--it could help you to better understand the differing criteria. Also, you might want to check out the dx info on the NDRF site, http://www.ndrf.orgNina Quote Link to comment Share on other sites More sharing options...
halalicia Posted December 10, 2003 Author Report Share Posted December 10, 2003 Thanks, Mighty mouse! I was just curious! I was diagnosed with the neuro.... thing and I decided to research it and the article about POTS showed up ! I have over half of the symptoms. Well, then I desided to call my cardio doctor and she said it probably wasn`t possible and that it ia rare! Is this a deadly thing to have? What is the difference between the 2 I has been a very frustrating year thousands of test. What kind of test s did they run to find POTS? Didn`t have any health problems until I had my last child! I even lost my job because of tachnacardia, weakness, dizziness and ect......I filed for disability but not sure if I will have a chance!!!!! Worried mother of 3, Halalicia Quote Link to comment Share on other sites More sharing options...
MightyMouse Posted December 10, 2003 Report Share Posted December 10, 2003 The typical tests include a total blood volume (nuclear medicine study) and a tilt table test.Here's a link to the POTS symptom list:http://www.potsplace.com/symptoms.htmand here's the link to the NCS/NMH list:http://www.potsplace.com/NCS/ncs.htm#symptomsThe major difference is that some people with POTS do not have a fall in BP, rather, the mostly have tachy (oh, and your doc is wrong, POTS is NOT that rare). NMH/NCS typically have faint or near faint episodes assoicated with a drop in bp of 30 or more mg of mercury upon head up tilt/standing. NCS/NMH may not have tachy. All of the above being said, I have a confirmed dx of both disorders, diagnosed during a TTT done at Columbia Presbyterian in NYC, Syncope Center. I was seen by their head of EP Cardiology. I have most of the POTS symptoms and most of the NCS symptoms. Many doctors believe there is overlap in the syndromes--probably moreso than those who think they are perfectly distinct disorders.You should probably download NDRF's free handbook on dysautonomia for an in-depth explanation in reader friendly language.http://www.ndrf.org/NDRFHandbook.htmHope that clarifies things for you. Nina Quote Link to comment Share on other sites More sharing options...
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