Jump to content

Pots Or Neurocardiogenic hypotention syndrome?


Recommended Posts

The short answer is yes and no. ;) Sorry to be confusing, but there is still some debate with regard to the *experts* about that. I happen to have a dx of BOTH. Go figure! If you haven't read through the info on the main DINET site, you may want to do so--it could help you to better understand the differing criteria. Also, you might want to check out the dx info on the NDRF site, http://www.ndrf.org

Nina :)

Link to comment
Share on other sites

Thanks, Mighty mouse!

I was just curious! I was diagnosed with the neuro.... thing and I decided to research it and the article about POTS showed up ! I have over half of the symptoms. Well, then I desided to call my cardio doctor and she said it probably wasn`t possible and that it ia rare! Is this a deadly thing to have? What is the difference between the 2 ;) I has been a very frustrating year :) thousands of test. What kind of test s did they run to find POTS? Didn`t have any health problems until I had my last child! I even lost my job because of tachnacardia, weakness, dizziness and ect......

I filed for disability but not sure if I will have a chance!!!!! :(

Worried mother of 3,


Link to comment
Share on other sites

The typical tests include a total blood volume (nuclear medicine study) and a tilt table test.

Here's a link to the POTS symptom list:


and here's the link to the NCS/NMH list:


The major difference is that some people with POTS do not have a fall in BP, rather, the mostly have tachy (oh, and your doc is wrong, POTS is NOT that rare). NMH/NCS typically have faint or near faint episodes assoicated with a drop in bp of 30 or more mg of mercury upon head up tilt/standing. NCS/NMH may not have tachy.

All of the above being said, I have a confirmed dx of both disorders, diagnosed during a TTT done at Columbia Presbyterian in NYC, Syncope Center. I was seen by their head of EP Cardiology. I have most of the POTS symptoms and most of the NCS symptoms. Many doctors believe there is overlap in the syndromes--probably moreso than those who think they are perfectly distinct disorders.

You should probably download NDRF's free handbook on dysautonomia for an in-depth explanation in reader friendly language.


Hope that clarifies things for you. Nina ;)

Link to comment
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Create New...