ramakentesh Posted November 27, 2009 Report Share Posted November 27, 2009 I was having a look through a few CFS forums and noticed that already a few patients that have sent in their tests for XMRV have tested positive. 2 and 4 at different websites. No info on their presentations yet but I will remind people that the Canadian criteria used for CFS for inclusion in the WHittlemore study included autonomic dysfunction such as POTS and or NMH Quote Link to comment Share on other sites More sharing options...
erik Posted November 27, 2009 Report Share Posted November 27, 2009 What, the Canadians think Fibromyalgia folks are hosers or something??? It's a pretty similar symptom cluster I think. Sure will be interesting to see what comes of this. Thank you for bringing it up.I don't suppose a retrovirus can trigger methylation, perhaps of a NET amplifier as well as a receptor population gene... and perhaps hinder the body's natural processes of reverse alchemical chelation as well? Just looking to tie up a few theories in a bow. Quote Link to comment Share on other sites More sharing options...
EarthMother Posted November 27, 2009 Report Share Posted November 27, 2009 Any standard labs testing this yet, do we know? And is the anti-body xmrv available now or is this still the 'simple' test? Quote Link to comment Share on other sites More sharing options...
flop Posted November 28, 2009 Report Share Posted November 28, 2009 From what I've read the test is only being offered by the lab associated with the clinic that have recently published research on XMRV and CFS. They are offering two different tests PCR to look for active infection and viral cultures to look for latent infection, they are very expensive tests $400 - $650 for both tests. I haven't seen any other labs offering this test and there doesn't seem to be an antibody test.This research is really in its early stages. There are both pros and cons to being tested so think carefully before spending your money.Flop Quote Link to comment Share on other sites More sharing options...
ramakentesh Posted November 28, 2009 Author Report Share Posted November 28, 2009 Yes the clinic involved is associated with the institute that published the paper. I was pretty cynical about it until someone told me that the results were verified independently by the cleveland clinic and some major cancer institute before publishing. that being said, it is a little too good to be true. She made the assumption automatically that it was a retrovirus and then the first one she checked for happened to be the one she reportedly found in 98% of patients with CFS (perhaps the super fluey variety?) Quote Link to comment Share on other sites More sharing options...
dsdmom Posted November 28, 2009 Report Share Posted November 28, 2009 If you want the whole story, check out http://www.wpinstitute.org/xmrv/index.html which will give you access to the actual Science article as well. Quote Link to comment Share on other sites More sharing options...
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