Any Pots Specialists Near Me?

[Griffin]

I am wondering if anyone knows of a POTS specialist anywhere I can get to.

I am well placed in West London just north of the river.

I can get to central London, South West and South central London, West and North West London.

I could also get to anywhere in the Home counties.

I have a heart specialist who specialises in hypertension (but I have hypotension) and he is being reasonably helpful with the tachycarida but he doesn't seem to know about POTS or some of the drugs mentioned on this board. I'd like to get a second opinion from someone who knows a bit more about it all.

[Mrs. Burschman]

I need one too -- but I'm across the pond, so if you find one, it probably wouldn't do me much good. Good luck, though! I hope you find someone good.

[juliegee]

I am wondering if anyone knows of a POTS specialist anywhere I can get to.

I am well placed in West London just north of the river.

I can get to central London, South West and South central London, West and North West London.

I could also get to anywhere in the Home counties.

I have a heart specialist who specialises in hypertension (but I have hypotension) and he is being reasonably helpful with the tachycarida but he doesn't seem to know about POTS or some of the drugs mentioned on this board. I'd like to get a second opinion from someone who knows a bit more about it all.

I hear about folk in England seeing Prof. Christopher Matthias. I think he is at the University of London, heading a team interested in researching autonomic disorders. Maybe google him to get contact info

Good luck!

Julie

[flop]

The UK POTS expert is Prof Christopher Mathias. He works at both St Mary's Hospital and the National Hospital for Neurology and Neurosurgery in Queen's Square.

Here are his contact details for NHNN Prof Mathias.

And here is some info about Prof Mathias and his clinical interests.

Your GP can refer you to either of his clinics but he does have a waiting list as he sees patients from all over the UK (I make a 600 mile round trip to his clinic).

Flop

[Griffin]

Thanks everyone.

Prof. Mathias has an incredible bio !!

Flop, it's amazing you can make such a long trip to see him. Must be worth it.

[flop]

Some of my visits to Prof Mathias have been brilliant, others disappointing but usually because I have built up my hopes too much whilst waiting for the appointment. He certainly knows far more about POTS than any of the doctors I have seen closer to home and he was willing to listen to me and my ideas.

Flop

[Griffin]

Some of my visits to Prof Mathias have been brilliant, others disappointing but usually because I have built up my hopes too much whilst waiting for the appointment. He certainly knows far more about POTS than any of the doctors I have seen closer to home and he was willing to listen to me and my ideas.

Flop

One thing that worries me is that in my consultant's initial report he noted an episode 5 minutes into my tilt table test where I almost passed out. There was minimal record of this as the BP monitor they were supposed to be using wasn't working and the nurse just took my BP every few minutes and not at the time at which I was feeling so wretched. (3-5 mins of standing is my usual limit before feeling awful so the test was consistent. But his latest report just says "tilt table test without syncope" alogn with the tachycardia and hypotension. I've been wondering if I should have another tilt table test. I suppose I feel a bit diffident about approaching an expert like Mathias.