Trying To Find Dr In Ohio

[csnell325]

I have been having probblems for a couple years with flare ups off and on and had found out about pots from a cousin diagnosed with it in another state she educated me about it and being a nurse i went further researched it and have been tryin to find a doctor to take me seriously and quit telling me that its just anxiety or mitral valve prolapse being symptomatic and that i am basically crazy but after goin to a family dr a neurologist a cardiologist and everything i still am yet to find a dr close to me that actually has the proper education and specializes in such a disorder.... i live in dayton, oh and the closest i can find a dr from this website was in columbus at osu so has anybody been there or at the dr in maumee and does anyone know of another dr that would be closer????

[It'sMyLife]

I think since you are already in Ohio, it would be worth it to travel to Cleveland or Toledo (to see Dr. Grubb). I'm from Ohio and praying to get back there soon so I can see Dr. Grubb.

[csnell325]

yea unforunately it is pretty far from me about 4 hrs one way and dr grubb doesnt except my insurance ...i have 3 little boys one im trying to nurse and long trips become very hard for all of us!

[Sunfish]

while i would be the first one to tell you that it would be best to have a doc other than dr. grubb who is able to work with you on a more ongoing basis, i'm inohio myself and do want to clarify that - if you are in fact in or around the dayton area - dr. grubb would NOT be a four hour one-way trip for you. he is by no means just down the street & i know any measure of travel can be tough, not to mention the no-insurance-coverage issue, but for the sake of everyone reading i just didn't want any confusion re: location/ geography.

not knowing exactly where you are in/ around dayton i obviously can't say down to the minute, but from dayton to dr. grubb's office in toledo the drive somewhere between 2 & 2.5 hours one way (so actually closer to 4 or 4.5 hrs roundtrip rather than one-way).

while i do have a number of doctors i would recommend in ohio, unfortunately they are all in or around the toledo or cleveland vicinities. that said, if you've already found yourself hitting a lot of brick walls in the medical community - an experience that's not at all uncommon in the effort toward proper diagnosis & treatment (amongst other things) - it very well might be VERY worth your while to plan a trip to one of the specialists in ohio. i would not recommend planning/ making such a trip instead of finding a physician who is more accessible to/ for you (both in terms of physical location & ongoing availability for day-to-day issues), but rather as a sort of step/ aid in the process. right or wrong, many people have discovered that having a documented diagnosis - official paperwork of sorts - from one of the "top docs" (or institutions/ hospitals), so to speak, and being that you are in ohio you are actually closer to several of the physicians/ facilities. yes i know they are all still at least a couple of hours from where you are and i know that it's not the easiest thing to plan or make a trip, but people literally travel from all over the country and beyond. so - since you aren't THAT far from several of these "top" docs/ facilities - it really might help you moving forward to pursue at least one evaluation at/ visit to one of these locales; in doing so (and in then - hopefully - getting your "official papers" re diagnosis, etc.) you might realize the added benefit of other doctors (i.e. those in your area) taking you, your diagnosis & treatment needs, & your overall situation a bit more seriously.

the ohio "hot spots" so to speak (in the realm of dysautonomia evaluation/ diagnosis/ treatment, that is) - are dr. grubb (at university of toledo medical center in toledo, ohio), several different doctors at cleveland clinic (in cleveland, ohio), & several doctors at case western reserve's university hospital (also in cleveland). searches here on the forum will provide more discussion/ opinions than you'd know what to deal w/ (for all three options) and each place &/or physician has it's strengths & weaknesses; if you do decide to proceed in that direction i would be happy to flush out the different options.

in the meantime, i certainly wouldn't forsake or even put on hold your quest for a good local doc as - despite all the specialists in the world - there is truly nothing more valuable than having a good working relationship with a an accessible primary care doc. i know it can be easier said than done, but hang in there and by all means do NOT give up!

hope this helps,

melissa (currently of nw ohio but born in southern ohio w/ several other stops - ohio & elsewhere - in between)