goldicedance Posted March 19, 2009 Report Share Posted March 19, 2009 I have gotten some relief from procrit during the past few months. It has helped prevent near faints. I am going to have my third injection (I get it monthly, not sure of the dose).My doctor is now concerned about the longer term of effects of procrit. My hematocrit (?) is not 37.My doctor wants me to see a hematologist to discuss the effects.Here are my questions:1. What dosage are you taking?2. Frequency of the dosage?3. Strength of the dosage?4. Hematocrit levels? How frequently are they tested?5. Who administers the procrit? Oncology center? internal medicine? cardiologist? self-administered?6. Do you get a prescription for it so that it costs less than if you got it at a specialized center like oncology center in hospital.My questions might not be crystal clear, but I hope you get my drift.ThanksLois Quote Link to comment Share on other sites More sharing options...
Rachel Posted March 19, 2009 Report Share Posted March 19, 2009 I can't help with most of your questions, but I can answer a few.I took Procrit for a short time, and I had injections once a week. My husband gave me the shots. The dose was 10,000 Units/mL. I had my hemoglobin checked once a month.Rachel Quote Link to comment Share on other sites More sharing options...
mrsdavidson8605 Posted March 19, 2009 Report Share Posted March 19, 2009 Eventhough I don't have answers to your questions, I have the SAME questions! I am about to take Procrit but am worried about the side effects and long term effects as well. What symptoms has it helped with specifically? Quote Link to comment Share on other sites More sharing options...
Rachel Posted March 19, 2009 Report Share Posted March 19, 2009 I know that Procrit has been very helpful for some people.A search for Procrit and/or Epogen may give some more information.Rachel Quote Link to comment Share on other sites More sharing options...
ajw4790 Posted March 19, 2009 Report Share Posted March 19, 2009 Hi,I know that this is likely going to be one of my next trials to find something helpful for everything, but I too do not know much about it. I am interested in anyones personal stories. I know I have looked it up some before, but it has been a while. I need to do more research again... Good Luck! Quote Link to comment Share on other sites More sharing options...
goldicedance Posted March 19, 2009 Author Report Share Posted March 19, 2009 Rachel,Thanks for the information. Who gave you the prescription? Wha were your hemoglobin levels? What was the maximum hemoglobin level you needed to reach before you were to stop hemoglobin.Where did you get the prescription filled?Thanks,Lois Quote Link to comment Share on other sites More sharing options...
Rachel Posted March 19, 2009 Report Share Posted March 19, 2009 Lois,Dr. Grubb recommend the med, but the prescription was actually written by my local pcp. I filled the script at my local grocery store pharmacy. They had to order the med as it isn't one they keep stocked, but it wasn't a problem getting it. The one difficulty is that it has to be kept refrigerated. If you need to travel, whether for pleasure or for a doctors appointment, you have to carry along a cooler to keep the bottle(s) in.I don't remember what my hemoglobin levels were or what the target level was. I was only on Procrit for a month and a half, so that was never something we had to be really concerned about. I think my levels were only tested at the beginning and once during treatment.Rachel Quote Link to comment Share on other sites More sharing options...
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