Washington D.c. Docs

[mkoven]

we're planning on going to DC in several weeks for sabbatical till next june. alan pocinki appears on the list and looks like a great doctor. could someone pm me if they've seen him? His downside seems to be that he doesn't take most insurances..

[MomtoGiuliana]

I see an autonomic dysfunction specialist in Salisbury, MD which is about 2 hours from DC. He used to practice at Johns Hopkins. We have one of the nation?s top-rated cardiology centers here (in Salisbury). If you want more info PM me!

[Sunfish]

i'm not familiar with the doc you're asking about & - up until i moved back to ohio about 3 years ago - considered myself pretty "in the know" re: any dysautonomia resources in the baltimore/ DC area due to combination of my own medical needs, communication with dr. grubb (who is from the area & went to school there, & thus has many connections out that way), & the fact that i knew a top pediatric autonomic/ CFS doc at hopkins. of course it's very possible that dr.pocinki is either new to the area or to his interest/ specialization in dysautonomia, so my not having heard have him may mean absolutely nothing!

i lived in Baltimore, MD - approx. 45 min north of DC - for over 8 years and saw Dr. Ramesh Khurana, a neurologist who specializes exclusively in autonomic dysfunction & headaches, for a good amount of that time. at that time he worked out of two offices in addition to his office in baltimore - one in columbia, md & one in another suburb between baltimore & dc that is escaping my memory at the moment. thus he's not right in DC but 2 of his offices are probably within 30 minutes or so of DC as long as it's not a heavy traffic time. not a bad distance really if it would be a good doc match for you; i know you've travelled much further lately! i did just check & he is still listed on DINET's physician listing (http://www.dinet.org/physicians.htm#United States); he's the first listing under maryland & his info there reads:

Dr. Ramesh K. Khurana

Hawthorne Office Park

10780 Hickory Ridge Road

Columbia, MD 21044

410-997-3113

POTS (OI, OT), NCS, PAF/Secondary Autonomic Failure, MSA, Anhidrosis, Hyperhidrosis

Autonomic Laboratory

Treats adults

his name, however, is also a link that leads to his baltimore city office listing. the direct link is:

http://www.unionmemorial.org/body.cfm?ID=1...p;doctorid=3887.

while no one is perfect, i was overall pleased with him as a physician during the years that i saw him. while my health (or lack there of) wasn't near as complex when i was seeing him as it is now, i did see him during a time of my life that included several surgeries, my having to stop working, & my traveling to vanderbilt as a research patient, so i wan't exactly the most ho-hum patient either. i know of a few others on the forum who have seen him in the past & may still be seeing him. i think there may have been some discussions on the forum over the years as well where his name has come up, not necessarily in posts directly about him but re: treatments/ testing with him & the like, so if you're interested you may want to search for past posts using his name.

if you have any more specific questions feel free to ask me here or via PM. that goes for if you need to find any other specialists for your stay in DC as well, as i know at least one of my other docs from my baltimore days had multiple office locations in the baltimore/ DC area.

good luck with all the preparations you're having to make before you make the trip out east. i would imagine it's a bit hectic at the moment but hope that it will be well worth it. in my entirely biased opinion you're headed to a great place!

hope this helps,

melissa, who is wishing she could hitch a ride in your suitcase!

[mkoven]

Thanks you guys for the tips! It's good to know I'm headed somewhere where there are some good resources. As you may have noticed from previous posts, things have not been easy with local resources.

(Originally we were headed overseas for sabbatical, but I think my health is just too unpredictable--so we're staying domestic. I just hope I can be well enough to use the time to do some creative work-- the whole purpose,)

BTW, if I'm on the computer at this ridiculous hour, it's because I"m having my nightly bout of chest pain. Oy!