Microvascular Angina And Eds?

[E246]

Hi,

Yes i did have a lying down stress test in London and felt fine at the time. Don't know results as they forgot to put them in file when i saw doc. Hey-ho.

My doc said a proper stress test would make me feel too ill.

I think i am having SVT's but i don't know why they make me feel ill for days.

Have just posted to see if anyone can recommend a pots cardio in the north or even London. Maybe you know of one.

Thanks - had a duff day feeling ill and no one answered my post about feeling ill after walking.

[Serbo]

i failed the lying down stress test, had to stop because of chest pain, Doctor thought it was muscular pain, but i'm not sure.

I dont really know of a specialist in London, best to ask the Prof. I had my ablation done under the EP's at Barts/London Bridge Hospital. They are good but not sure how familiar they are with POTS. SJ mentioned an EP in Bristol who she had met and was familiar with POTS:

WWW.wholehealth.me/jcpittscrick.html

[E246]

Hi

Did you have a lot of problems before the ablation?Did a fast heart rate set the pots of - thats what happens to me. It seems to drive the pots.

Why did you go to London?

Are you happy that the pain is muscular - i think you are the best person to know but why would pots cause muscular pain.

i suppose i get chest pain when i stand and my heart rate increases so i think it is like an angina type pain. Maybe microvascular. But as yet have not really had a chance to work this out with a cardio-which is my next step.

I am really interested in the ablation if you care to tell me more.

[Serbo]

I had chest pain and dizziness before the ablation. Dizzyness was just put down to being on beta blockers, but in reality it may have been the onset of pots. I had never fainted though, just was always dizzy prior to ablation.

I live in London so had the ablation there. Had to have the ablation as was going in to funny rhythms every time i exercised (no chest pain at the same time though), so quality of life was poor.

After the ablation was very ill, and finally after about 9 months got a POTS/EDS diagnosis. Not sure if i would have got POTS so full on if i handnt had the ablation, but i needed it. Ablation's have been the trigger for a few on here with POTS, normally ablations for ANVRT but there are others who got POTS after other types of ablation.

The Doc's don't really know why it happens, but with certain arythmia's the ablation can make pots worse. Apparently this is more so the case in those with EDS. That is only anecdotal, i haven't seen a paper or study on it.

Not happy not knowing what it is, but i know what makes it worse - poor diet, standing still/quick changes in posture, stress so trying to limit this where possible. The pain has never spread to arms or jaw as true angina would, and is generally short and sharp or short lived.

Re- Muscular pain and EDS, have been told with EDS we are subject to something called Amplification, whereby we feel pain much worse than non EDSers, so a pain in our chest cavity would be felt a great deal.

You probably already know about it but there's a forum, think it's called ukhypermobility forum with some good information on there, might be worth checking the site out to see if you can find a good Cardio's details. sounds like you need a good EP with an understanding of POTS to do some tests and put your mind @ rest.

[E246]

Thanks Serbo,

Can you tell me what an EP is. Is it Endocrine....?

When i get get chest pain it can travel down my arm and sometimes it is only in my arm.

Need to do some research on EDS as it has only just been suggested by new doc but i knew i have always been hypermobile - not sure if they are same thing.

Did you try any meds for the tachy before the ablation?

[anna]

I posted this on another post! not sure if it may be of relevance;

We are not sure what is going on in our family!! But it is odd that you mention microvascular spasms, my son had TTT yesterday and no POTS found but big big drop in BP on raising so Orthostatic hyportention noted, Dr. said he wonders if it is to do with micro vascular issues!!!!!

Also for years we have all dealt with chest pain that radiates into neck down our arms typically this happens with exercise like running, or walking up hills. I have often wandered about angina due to spasms, and oddly some years back I was getting bouts of angina type chest pain, that were becoming a daily occurrence I was put on a Calcium channel blocker (and some other meds) for high BP and my angina type symptoms reduced! CCB are used to treat:-

Prinzmetal's angina is a form of chest pain, pressure, or tightness (angina) caused by spasms in the arteries that supply blood to the heart. It is a form of unstableangina, meaning that it occurs at rest, often without a predictable pattern.

[Serbo]

Thanks Serbo,

Can you tell me what an EP is. Is it Endocrine....?

When i get get chest pain it can travel down my arm and sometimes it is only in my arm.

Need to do some research on EDS as it has only just been suggested by new doc but i knew i have always been hypermobile - not sure if they are same thing.

Did you try any meds for the tachy before the ablation?

EP - Electro-physiologist, They specialise in the heart rythym, as opposed to a generalist cardiologist.

Yes was on a beat blocker called Sotalol and asprin, and tried a beta blocker called Bizopralol, but that one gave me chest pain and nasty side effects.