Randi Free Posted May 22, 2008 Report Share Posted May 22, 2008 My daughter saw her cardiologist today and when he saw all of the bruises and cuts she has from falling he ordered an EMG and prescribed a drug called pyridostigmine bromide. i'm wondering if anyone on the list is taking this and hae you had good results?Randi Quote Link to comment Share on other sites More sharing options...
dsdmom Posted May 22, 2008 Report Share Posted May 22, 2008 That's the generic name for Mestinon. I started this drug over a month ago and am liking it. I react very strongly to drugs though so am on a very low dose. If you do a search on mestinon you'll probably find more information. Quote Link to comment Share on other sites More sharing options...
Megan Posted May 23, 2008 Report Share Posted May 23, 2008 It's been a lifesaver for me. Make sure she eats before she takes it, cause it can cause upset stomach. But other than that it's helped me immensely.Meg Quote Link to comment Share on other sites More sharing options...
Randi Free Posted May 23, 2008 Author Report Share Posted May 23, 2008 Which of your symptoms did it help?RandiIt's been a lifesaver for me. Make sure she eats before she takes it, cause it can cause upset stomach. But other than that it's helped me immensely.Meg Quote Link to comment Share on other sites More sharing options...
Megan Posted May 24, 2008 Report Share Posted May 24, 2008 Mostly it helped with my brain fog, a ton. I also noticed that I felt more "normal" in that I could get out of bed more easily in the morning. I'm not entirely sure how to explain it, but when I miss a dose I notice a big difference in my overall feeling of health.Meg Quote Link to comment Share on other sites More sharing options...
wireless Posted May 25, 2008 Report Share Posted May 25, 2008 I am new to it and like it too. It's somewhat like midodrine. In a study they found mestinon did the same type of good BP raising as midodrine for POTS, but it has less side effect. Quote Link to comment Share on other sites More sharing options...
SunsetParadise49 Posted May 26, 2008 Report Share Posted May 26, 2008 I love mestinon. It has improved my quality of life a lot....I'm less dizzy, don't pass out as much etc. Quote Link to comment Share on other sites More sharing options...
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