sarct Posted April 8, 2008 Report Share Posted April 8, 2008 I got back form my neurologist. I had a 24 hour test done where I was video monitored and they had wires on my head to monitor brain activity. I had 4 mild episodes unmedicated. I was really bummed thinking I wouldn't have any results, and was shocked that he told me I had Orthostatic tachicardia. He said my heart beat went from 78 lying down to 125 when I stood up. And stupid me, I asked no questions. Just said OK, and he let me be on my way. Said we may raise my zoloft to 100mg if my episodes become more frequent again. I kicked myself the whole way home. I always do that. I never think of my questions till I am in the car and on the way home. So now I am off to my GP to get a referral to see the specialist I found on this site. I really hope to have 1/2 a brain to ask the questions necessary. SIGH! My biggest question is because my husband and I would like to try for baby #2. Should we just count our blessings for having our 1 child? Will I get worse the older I get? Will I not be able to care for a baby in the future? We really want to know what to do as we were thinking about trying in the next month. I feel better being on Zoloft. More energy, and less episodes, but I can't take that when we begin trying to conceive, and what happens then?? I left a message with the neurologist to call me, but we will see how that goes. I apologized for not asking the questions while I was there. Quote Link to comment Share on other sites More sharing options...
sarct Posted April 8, 2008 Author Report Share Posted April 8, 2008 Well that was a quick call back. He basically told me that this condition is just recently being diagnosed. There is no evidence of causation as of yet. There is no way to predict if my condition will get better or worse as I get older. He said many people have this temporarily and others live their life with it. He just told me to do some research online about it. So nothing answered as of yet. I don;t want to bring a baby into this world, and not be able to care for him or her fully. But I desperately want another baby. My heart is aching and this limbo process I am living in is killing me. Quote Link to comment Share on other sites More sharing options...
Resting Posted April 8, 2008 Report Share Posted April 8, 2008 I try to make sure that I write down all the questions I want answered and take that with me to the appointment. That way I don't have to rely on my questionable memory! I'm so sorry that you're having such a hard time right now. I don't know enough about POTS to tell you what that diagnosis means, but I hope the very best for you in relation to having another baby. That desire would be a very difficult one to let go.Cindy Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted April 9, 2008 Report Share Posted April 9, 2008 Having POTS does not prevent you from having another child necessarily. As your doctor said it seems that the course can be very individual and hard to predict. But it is not considered progressive--meaning you are not going to be getting worse and worse--most of us have good periods and then times of flare up. It can be managed often very successfully with drugs when needed.If you PM me, I will send you an article on POTS diagnosis and treatment. Quote Link to comment Share on other sites More sharing options...
sarct Posted April 9, 2008 Author Report Share Posted April 9, 2008 I wanted to ammend It was 74Beats per minute when I was sitting, and then when I stood up it went to 135BPM. I remembered the results wrong, but I wrote them down, and noticed I got it wrong earlier. I have been researching all day since I got home. I am learning about how much of my life is affected by this. Areas I had no idea. Like I get days where I feel like I have the stomach bug. My mother in law said to me a couple months "dang you sure get the stomach bug a lot". Where I get what I have always called flu burps and real flu like for anywhere from a few hours to a day. I always just attributed it to something I ate. I also run hypoglycemic. Is that the low one? Where my sugars drop. When I was overweight I assumed I was becoming a diabetic. It was the number one reason why I lost weight, but recently I noticed I am getting low sugar again if I don't eat breakfast in the morning or I eat something real sugary. So many other things. I could go on and on. If I can just find a way to keep decent energy levels...I was sooo good yesterday. I thought, wow the medication is really working, and then I woke up this morning the same ole same ole. I keep getting my hopes up when I have a good day and then I get knocked back into reality the next. It is terrible. I am still trying to train my brain into accepting all this. I mean, I feel like I have to grieve the life I will never have. I just always assumed someday I will get over this and finally begin living. Reality has slapped me upside my head and now I am really feeling a sense of loss. I mean, one day I was sitting down to watch a movie with my husband and the sound was way loud when it started and it caused me to get real nauseus and sick and I had to control my breathing to bring my heart rate back to normal. I was a mess. I will get strong. I am just trying to come to terms. It's hard for me to accept the things I can't fix. I am always one to seek the truth and resolve the problems at any expense. I guess that is why I am so frustrated. Quote Link to comment Share on other sites More sharing options...
Megan Posted April 9, 2008 Report Share Posted April 9, 2008 Hang in there. As much as it *****, you'll fairly quickly adjust to the little things and they'll seem almost like second nature. I hope you're doing alright.Meg Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.