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karena

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  1. karena

    Hi. A while back, you were asking about a Dr in the Seattle area. I believe that my daughter that attends the University of Washington suffers from POTS. Her cardiologist at UW medicine called her emotional and does not believe her, despite having the s/sx that many of you talk about.  I'm trying to help her from California. Did you ever find a Dr in Seattle that understands this disorder?  Thank you so much!

    1. Show previous comments  7 more
    2. KellyA

      KellyA

      I liked him. But I don't think her has much understanding of my underlying AI diseases, because it's so rare. I'm just hoping he can give me answers. He seems really smart, and is soft-spoken. He doesn't have a nurse or MA, which threw me. He did everything. I'm waiting a week or so more, but if I feel like he's still dismissing my symptoms and NE levels, I think I might see if I can get in at UW. I've always wanted to go to Alaska, but I've heard healthcare is tough to manage there. Question for you...do your hands shake? He thinks I have tremors, but I think it might be from the high NE levels.

    3. kalamazoo

      kalamazoo

      I do actually! They seem to be more prominent in my left side. Anf alaska charges roughly 8-10 times more for medical stuff there it's insane. There's onlu 1 ot 2 specialists in each field there so they charge insane amounts. The health care there is actually horrible.

    4. kalamazoo

      kalamazoo

      Also i saw dana therley in everett a few years ago but she was extremely dismissive of my health issues which is why i stopped seeing er

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