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hsinthecountry

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Posts posted by hsinthecountry

  1. Amen Tammy!

    I know there are many (including folks associated w/ this board) that are attempting just that. A wonderful mom who has a son very sick w/ POTS even wrote a letter to President Bush about this. It is difficult for everyone w/ the illness because we hesitate to schedule dinner w/ someone b'cause we may be too sick/tired to follow thru!

  2. Do you experience an increased heart-rate with ritalin, adderall or provigil? My sleep doc was going to put me on a stimulant for my fatigue but we were worried about tachycardia and so we haven't risked it....

    I havent had the increased heart-rate, though the jitters, nervousness, and being "on-edge" keep me from taking it except on really bad days. (actually, lately I've just been using provigil). I highly recommend the provigil in that other than yucky metallic taste, headache, and sore-throat, it actually puts me in a good mood and takes away the cotton-for-brains (as long as I dont take it too often)...

    Hope this helps.

    Peace,

    Dave

  3. I too have tried Ritalin for fatigue, moved to adderall. Works well, but as someone above said, the "crash" is very hard. I found that I get pretty aggressive and on-edge but it does help the very bad days. I prefer provigil over it though.

  4. Sorry about the fatigue. That to me is the worst part of this. Always to tired to do things... Two drugs that have helped alot:

    1) Welbutrin

    2) Provigil (short term band-aid) - Great stuff, but my body builds up tolerance quickly. So I save it for the very bad days...

    As others have said: hydration, salt, lots of rest - good advice. Best regards.

    Peace

  5. I take provigil and it works great for me. There are days I am sooo tired i would not be able to function w/out it. I do build up a tolerance to it rather quickly so I take it only occasionally (for the really bad days).

    Side effect for me is sore/hoarse throat, but it is tolerable given how it helps me.

  6. I have used xanax for a couple years for sleep. Almost every night when I was on SSRI's. My doc said as long as i didn't take more than once per day, wouldn't have addiction problem. I have gone two weeks w/ out xanax and dont miss it (when I dont need it). It also comes in handy for those days were anxiety is a problem. My pri doc feels it is safer daily than say ambien.

  7. I have used Provigil with great success. There are days I am so tired and "foggy" and the provigil helps so much with that. I use xanax when i need to sleep or anxiety is thru the roof. I haven't used Klonopin, so dont know - though it sounds like it may be more like xanax in effect. If you start the provigil, be patient with it - I had bad headaches and sore throat when I first started it, but those went away after a couple weeks. The provigil also improves my mood substantially. Hope it works out for you.

  8. Provigil has been an answered prayer for me. This like many other drugs gave me side effects at first, but after a couple weeks those went away. I also deal with anxiety from time to time and heart palipatations (MVP) and havent noticed any increase in issues there w/ provigil. I take 100mg daily (soon as i wake up).

    I'm also trying concerta - 27mg dose -doesnt do nearly what 100mg of provigil does.

  9. I definitely am with you on the cognative issues. I struggle with this almost daily. Provigil and Concerta(ritalyn) have help lots. But I feel like I have half the mental capacity (memory, decision making, reasoning) than I did 5 years ago. There are days I am just too tired to do anything. Exercise (running) used to help me lots, but w/ the post-exersional fatigue and joint pain, that doesn't work anymore (actually makes things worse). Hope you find somethign that works!

  10. Welcome Amy.

    My symptoms seem to vary day to day - The more active I am, the more severe the symptoms. Also, deep concentration seems to bring on episodes for me.

    I too am able to work, but deal with fatigue daily. Provigil helps a lot with the fatigue.

    You will find much useful information here and support also.

    Dave

  11. Susie,

    I take zoloft and my cheif complaint is that it keeps me awake at night. I had naseau, cramps, diareahha (sp) but that went away after a few days. I just started the zoloft again because all the stress of the new job triggers symptoms, so i've got the sleepless nights again. Taking xanax and that helps me sleep and gets rid of the anxiety. I just asked the doc today about switching to another ssri. i need to search the posts and find out which folks say has the least side effects... Best wishes

    dave

  12. I have found that drinking too much water actually makes my NCS episodes worse (just like not having enough). I use to take a gallon of water with me and try to drink most of it (with salty foods) before trying the drugs for ncs, but this aggravated my condition.

  13. Thanks everyone for the warm welcome! Nice to know I've got so many new friends that share the same struggles. I look forward to getting to know you.

    Anyone using zoloft for NCS? My doc said that this is suppose to help the NCS and my depression, but it keeps me up at night. Will this go away after awhile?

    B) thanks again everyone

    Dave

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