tsampa

it's not very easy to be with low blood presur.

this morning i'll go to buy some meel but i must wait to minute to pay and for me 2 minute when it's hot it's a problem.

i like cold water. i like to go to the lake when the water is 18 degres...i'm feeling so nice with me leg in the cold water.

does the heat make that you blood presure is going done ?

since it was so hot i could not stay up more than 2 minutes...

hi,

just wondering if exercise has made anyones condition & symptoms worse in the longrun. i mean exercise aimed at getting you reconditioned, not going off and running a marathon!

thanks

in short term i'm very tired

but in long term i'm feeling better .

but if i was in a worst time like now it is very difficult to do sport i'm to much tired but i think i must perserve to do ....for becomming better then some month.

in some period when i'm not feeling good i'm losing weight.

and when i'm stable i take weight.

in novembre i have an operation of the vesicule and until i lose weight and i'm very tired.

you also are tired when you lose weight ?

I'm stymptom are the same worst are my pots worst it is.

I try to stop this doing sport.

but for the moment it is not possible to do sport has usuasl because 2 weeks ago i had an operation of the vesicul, so know my symptom are not not good.

presure very down and diahree in the morning...

me until I had pots i had diarrheoa. I also do colonoscopy.....

some week i have no problem but some other it is very worth.

I take immodium.

I know I'm intolerent in lactose but i eat nothing with lactose.

It is hard to live with this probl?m.

Hello,

Do a lot of you having pots having diarrhoea ?

if yes what do you do to be better ?

thanks

at the begining i could not go out of my home.

and when their found that i had pots and they give me medication i try to.

first i take a well chair. I had training me every day to walk a little and day to day I could do more.

I was ill until 10 years but every day I training me to walk or run a little more. now i could run 15 minutes. for me it's a miracle to do this.

but these time i'm not so good i must surelly go to the hospital to take away my vesicul bilaire. I'm afraid to loos all the effort i do.

Hi,

Usually they give you medication.

me i have pots but in the tilt table my blood presure is going done very done.

in frensh you say tomb? dans les pommes.

Perhaps it is also why we are taking medicine every day and we don't support it very well.

ok thank you for your answer.

I see I'm not the only one to have stomac pain.

during a long time my doctor give me every day peptobismol. with this I have never stomac pain.

but it is not good to take pepto every day.

you know why we have stomac pain. It is why we have pots or it is something else ?

Do you also have a lot of stomac pain and have pots ?

I have a severe pots...and not only pots...at the begging i was in a wall char. but day after day week after week i could do more en more...

more for me but if you compar to a not ill personn ...it is not good to do 6km in 50min. but for me it's a miracle. i work for that every day.

i see more then you stay without doing exercice more then you become ill. with pots you must not stay in a chair on in your bed, after it is more difficult to could stand up.

because of pots my immun system is not going well and now since 6 years i also have a keratocone to my two eyes...and i have also the illness of birmer.

but i continue to do exercice.....it is difficult i know but after in you life you could do more things.

Do you are making sport every day with your pots ?

because doctor said if you have pots you must make sport 1 hour every day.

I have pots until 10 years. And i see a spcialiste of pots in milan. He said to me to do exercicie 1 hour every day. and specialy exercice for leg. you could do that in a fitness.

at the beggining it is very very hard to do exercice. me I'm doing 5 times sport in one week.

At the begging of my illness the doctor doesn't know if i could walk....and know 10 years after ...after 10 years of hard training I could run and walk 6 km during 50 min.

I think you must continue training you. Me the day I do exercice I'm very tired after my training I must staiy calme at home. but for my life it is very very better then before. now I could go on holiday

but in the tilt test it is the same ten 10 years before.

the exercice had not do that i could stand up in one place more than 6 minutes.

Do you are making sport every day with your pots ?

because doctor said if you have pots you must make sport 1 hour every day.

I am soo upset and figured that the best way to express myself would be to share this with someone who can relate to me! I was walking into work at Walmart Pharmacy and was not feeling well today, so I decided to use my handicap tag and park a bit closer today. Well, this women comes over to me and says "This is a handicap parking space." I reply saying that "This is a handicap tag." The tag was not blue, but red because it is temporary and my doctor re-evaluates me every 6 months. The women still did not believe me and went to the customer service desk and then went to find a manager. I supposedly "did not look like I needed a handicap tag." I WAS SO UPSET! WHAT NERVE DOES THIS WOMEN HAVE TO JUDGE ME AND WHY WOULD I NEED TO OFFER HER AN EXPLANATION. The handicap tag is issued in my name and it is valid... SOME PEOPLE NEED TO MIND THEIR OWN BUSINESS!!! I felt angry and then upset. The only people I knew who would understand me would be others who deal with POTS etc on a regular basis... Any words of advice? or support

I know it is an illness that the people don't understand. their could not understand if their have no problem themselves.

Me I think with those people I will not d?pence energy for us.

switzerland (neuch?tel)

thanks for all respons merci ernie tu peux aussi m'?crire si tu le veux.

know i will try to be stable and do sport like my cardiologist said. and i will try in some month to have a baby.

my gyneco is a very good doctor it is for pots that they is no doctor in swiss.

Me I live in neuch?tel in switzerland.

i see my gyneco today and he said that it is ok to take my medication during pregnant...i'm happy to know that.

thanks for your answer.

I prefer of course to adopte. Before I was ill I will adopte because I would give the chance to a baby to have a good life. But in swiss to become the right to adopte it is not easy and you must give medical sertificat that you are not ill.

But I will see if I have a chronic illness if I could.

and i will speak a lot with my friend to see if i coul take care of a baby.

When I take car of the baby of my brother juste a few ours after I'm completly tired. so i must think of that.

my first langage is frensh.

I understant english but it is difficult to speak.

thanks for the links.

I'm afraid not of the pregnancy but when the baby was here to care for a baby. the father of my futur bady will help me a lot when he finish his work. And I think if I have a baby 2 moring in the weeks I must but my baby to a nourise.

I'have pots since 1996 but in switzerland there is no doctor of pots. nobody knows this illness.

between 96 and 2004 I work half time but now i could not work beaucouse I'm so tired all the time and i have indestinal problem.

every body speak about the pregnancy but not so much after. if all is ok.

thanks very much.

Hello,

I have a question for women who have pots and who have a baby.

I want to have a baby but i don't know if I would be able to occupy to the baby because I'm always very tired.

in the morning i could not wake up at 6 because i don't feel good.

I want realy a baby but I am posed a lot of question.

please help me.

thanks

I saw an immunologiste because I also have all the time infection. indestinal urinary infection.

the immunologiste take blood and do a lot of exam.

but my my immune system is ok so he recomane me to see an infectiologue

I have pain and diarrea all the time.

And during my menstruation when i must go to the restroom I have a lot of pain to my rectume.

are this the symptome of endometriose ?

I will see a gastro in two weeks I hope that he found a solution because every day I have diarrea.

thanks

tsampa

what are the symptom of endometriose ?

and how the doctor find that ?

good luck

tsampa