JAQUIROUIN

Hello, I also I have Sjogren's syndrome and pulmonary hypertension.

Hello, this video is wonderful. I bought it, and I sent him to Mexico. Ga I served much. Thank you.

Good afternoon, I wonder if there will be some group will travel i

To California since late November. I would like to attend. And knowing them.

Thank you have a nice day.

Hi,

How many of you have fibromyalgia with dysautonomia?

Have a nice week!

PLease make de diference use the words: ask me which is the dysautonomia where ever you want

Its for all that have dysautonimia

http://www.facebook.com/photo.php?fbid=1712954387818&set=o.122709864474918&type=1&theater

Have a nice day!

Hi!

May 12th. World Day to raise awareness about the dysautonomia

Wears a badge that read: ask me which is the dysautonomia

Work together!

Have a nice weekend.

http://www.facebook.com/photo.php?fbid=1711885321092&set=a.1469671945909.2063729.1356916035&type=1&theater

Hi!

May 12th. World Day to raise awareness about the dysautonomia

Wears a badge that read: ask me which is the dysautonomia

Work together!

Have a nice weekend.

http://www.facebook.com/photo.php?fbid=1711885321092&set=a.1469671945909.2063729.1356916035&type=1&theater

Hi!

I have POTS and Syndrome Sjögren.

Any of you have this?

Have a nice day!

I invite you to Mexico to participate in the second national meeting of patients with dysautonomia.

www.disautonomia.com

Have a nice day!

THank you, for yours answers.

I´m going to investigate more about it.

Have a nice day!

Hi!

I want to know tha If We have dysautonomia, our inflamation its more than in other people?

Have a nice week!

Hi

I have the experience with twitter and I can ?t make more contact with people.

Why don?t make a twitter.

Have a nice day

Jaqui

HI SOME OF YOU KNOW ABOUT SOME CONGRESS ABOUT DYSAITONOMIA?

THANKS

JAQUI

So sorry.

I undersand you, because some years ago I felt that.

Really you need to go with a doctor, because your hearth need to rest. Maybe you need some medicine for don?t feel that.

Could I put your yuotube video in my web? www.disautonomia.com

Have a nice day.

Sincerly

Jaqui

By the way i was in Mexico two years back - I was nearly totally well there! I loved tepoztlan and Oaxaca and Chiapis states.

Hi, I live nearly this places and are son pretty.

Have a nice week

Thank you!!

I?m going to talk with my dr about this.

Have a nice day both.

Jaqui

I don?t know if my dysautonomia have some relation whith POTS or SNC?

Are you know something?

Thak you,

Have a nice week.

wow, that was I lived with my diagnosis. Do ypu know wish is the name o that season of "House"

Thanks!

yes I was like 18 minutes and then they put me a medication for put me a tube for my lungs. I was in UTI for four days with the tube

thaks for your aswer

have a nice day

Experts could know. Seizures from lack of oxygen present in a certain way. Throwing head forward then back and aching the body , arms and legs go out away from torso then in toward torso. The pattern does not increase or decrease in intensity for the duration.

Get as many details as you can on the movements and sounds that occurred. Also how you felt before and after.

Status epileptic is like 20 minutes long, isn't it? That alone might mean it was epileptic and not lack of oxygen.

I have had 3 "bad" seizures and about 6 little ones. My grand mal type lasted 1 to 2 minutes. The others about 10 seconds. Mine are from lack of oxygen from NCS - bradycardia.

This book.

http://www.amazon.com/Syncope-Mechanisms-M...d_sim_b_title_1

has details about seizures.

Good luck.

Hi!

Some days ago I had a status epileptic, I didn?t know if this have relation with POTS. Are you know?

Thaks for all

have a nice day!

Hi!

My Dr. said me that I have vasculitis and I don?t know if it have to be with POTS?

Are you know some of this?

Have a nice day!

Hi

I have my ANA positive then the doctor made me a SS-A y SS-B for Sj?gren and it was positive I have POTS and for me its so tired because I have to live with both diseas. But I am studing all the treatments of tb oth diseas.

Don?t worry. You need to have information and learn how to live with both.

Have a nice day!

Are you know about some alternative medicine for help POTS?

Hi

I had have many problems with my lungs and few days ago the neumology say me taht I have asma. Some of you have asma and POTS?

Thank you

Have a nice day

I use a walker with a fold-down seat. It may be overkill if you don't have joint pain, but I really like it.

Michele

Its an other good idea, now I?m thinking about what kind of help I?m going to buy.

than you,

Have a nice night!

I got a seat cane from Magellan's that is really lightweight but can hold up to 250lbs. Pretty cheap too (under $30). I have another seat cane that is a lot heavier and tends to wear me out a lot more, so I've found that this one is pretty helpful.

Try magellans.com and search for "sport seat". If you can't find it, let me know and I can try to give you more info.

Good luck!

Lauren

Hi! Thank you I saw the sport seat. The web is excellent. I?m going to check if they sent thigs to M?xico.

Have a nice day!