New to this site....desperately looking for answers. I found this site and have been reading some of people's cases. My story started a bit different but I'm experiencing some of the sam eproblems.... July 16th 2005, would be the day that has changed my life completely. I'm a 36 yo female, use to be healthy, and excercised quite a bit. That night I got an allergic reaction (anaphylaxis due to a spider bite) at the ER I was put on prednisone (high dosis - 60 mg) for week and a half, then taken off the prednisone I think too fast which caused a relapse, another trip to eh ER almost fainting, couldn't move and my HR was 140. I was put back on 50 mg of prednisones so in total I took it for a month. It seems like during that time I developed symptoms not consistent with what I was experiencing, extreme dizziness (even on the prednisone) hypotension and orhtostatic hypotension, increased HR. Increased frequency of urination, I was basically dehydrated as my body was not "absorving" the water. As it came in it went out. I was basically bed-ridden for a few weeks and could only go to the bathroom almost crawling.....My BP was 85 (high) sitting and dropped to 67 when standing with increased HR. I would get what I call "dizzy episodes" in which I would get extremelly dizzy, HR increased, increased urination, and cyclical diahrrea. Also numbness and tingling sensation. My GP told me I was experiencing a problem with my autonomic system but didn't know why. He said "you'll eventually get better". I needed answers as I had been out of work form quite a long time now (in total almost 2 months) I went to my endo (I have Graves disease but my thyroid has been under control), who decided to put me on a very low dosis of florinef to help and it did. After a few weeks I started to feel better although still experiencing some mild dizzy episodes that I could handle. I went back to work. Now, my endo took me off the florinef (slowly as it seems I'm very sensitive) and will test for ACHT. and in conversations with my new GP (you bet I switched Drs) decided to put me on proamitine to help while I was out the florinef. This med hasn't helped much. I feel very weird, a tingling, chill sensation all over my body and a weird feeling in my head (like fullness or s/t). Started over the weekend and two first days was ok, then by the third dau started to feel these weird sx coupled with dizziness...Now, I'm back at home. Also, I noticed yeaterdat that my HR instead of increasing during the episode actually dropped!!!! I was seated and it went from 80 to 64 within minutes. Stayed there though but I decided not to take the noon dosis. I was started with 2.5 mg morning/noon and to increase (today) 5 mg in the mroning and 2.5 mg at noon. I felt really bad again with all sx. My GP is sending me to a cardiologist for an event monitor and possibly a Tilt table test. I had an echo done that showed mild mitral leaflet thickening but not prolapse, Dr said not to worry about it. At this point, three months after everything started, I have no idea what to do or where to turn to. This has sucked my life out of me and don't know what to do next. My Drs are trying though....any one with similar sx? experience w/florinef and proamitine? Thanks for listening and any feedback would be appreciated.
