My 23 year old daughter has been diagnosed with POTS. She woke up about 3 months ago with chest pain and shortness of breath. She had an abnormal EKG and her resting heart rate was 112. She was fitted with an event mnitor which went off every few minutes for the 2 weeks she wore it. Mostly tachycardia. What I dont understand about that is that she is having an elevated heart rate of up to 175 bpm during sleep. She had a tilt test whereher heart rate went up over 30 beats a minute after about 10 minutes. Her blood pressure dropped to 40/30 and the test was stopped. her shortness of breath and chest pain has gotten worse over the last 3 months. About 2 weeks ago her legs started giving out on her with no warning and she would fall. Within 3 days she was hospitalized and unable to even stand on her own. She had an echo, CT scans, MRI's of her head and back, xrays of her hips, legs and knees and nothing unusual was found. She gradually improved to a walker and now a cane. she has been prescribed physical therapy for her legs and her cardiologist is attributing it to the POTS. Has anyone else got this leg involvement? She also has been diagnosed with atrial flutter as the event monitor showed episodes of her upper heart beating at about 300 bpm. She has been put on norpace for this. She is on clonipen for her legs and fludocrt for the BP. None of this sounds like the stories Ive read on this list and I don't know what to do next. We are in Colorado and I have't been able to find a doctor whospecializes in POTS locally. Any input would be appreciated. Thanks