grace

That would be great to get that website on high sodium foods? grace

I had a visit with my neurologist about the TTT and he said I was positive for Postural Tachycardia Syndrome. I?m still trying to educated myself about pots and still a little confused. He said my heart rate dropped 30 points after 30 minutes of tilting with no significant blood pressure change. Every article I have been reading seems to imply that your blood pressure would change too. IS this really POTS? He is not a specialist in this field. He put me on a low dose of florinef . I also asked him about taking a blood volume test and he said it wasn?t necessary since I already tested positive. Is the blood volume test needed for something else or is it just another way of making a diagnosis for pots? Thanks Grace

Hi, Still a little new to this forum. I am going to get a (TTT) Thursday 20th for the first time to be tested for Pots. I was diagnosed with CFS and after recently learning about this, I presented the research to my doctor. I found a neurologist who is working with me and has the (TTT) but also have been reading that most people take a Blood Volume test at the same time? IF so, where can I get the name and type of lab work to ask for this? Thank you Grace

Hi I am new to this and I want to express how lucky I am to have found this site. I was watching the show mystery diagnoses and was stunned to realize after 10 years of suffering from CFS that out of all the Docs. I have seen that none mentioned pots. After doing some research on this It seems I have a lot of those symptoms. I went to a neurologist that has a tilt table but they have only have had it for 2months. I haven?t been able find a cardiologist or neurologist that has experience in diagnosing dysautonomia specialist here in Utah. Is there someone out there that knows a doctor here in Utah or Salt Lake City area? IF not, where can I get the exact tilt table test protocol so he can to it correctly. The neurologist is willing to work with me but I want to make sure he does it correctly or follow the way they test at JHU. Thank you for your time Grace