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Milisar

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  1. I was diagnosed with pots in 2022 and improved a lot with fludrocortisone. Poohbear what meds have you tried and is your son on this med too? Over the last few months I noticed my mouth seemed like it had an unusual amount of saliva in it where I felt I started drooling, so I'd stop what I was doing and forced myself to swallow, but noticed it could take several tries to actually swallow and I'd have an upper torso (diaphragm) spasm. The spasms aren't new. Bright lights could cause them or after eating heavy meals and talking too much could cause them as well as laying down. After swallowing triggering these spasms was new. I just had a barium swallow test with a speech pathologist and she said they were larangeal spasms. I'm down about this, but definitely think it's associated with ans issues. I've found electrolytes help significantly and I wonder if I have that sodium potassium voltage gate issue they talk about in dysautonomia forums. When I have trouble breathing (air hunger) I've measured my respiratory rate and I can only get in 9-10 breaths a minute. After taking electrolytes it goes up to 15 and I'm not so dizzy anymore. I'm just wondering if the larangeal spasming also would be impacted y electrolytes.
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