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Mom22

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  1. To anyone who may still be following this thread or comes across it like I did… My daughter, now 18 and recently confirmed/diagnosed with POTS via tilt table, had HSP (an autoimmune blood vessel condition) when she was six, like the OP above. Her general POTS symptoms (nausea, headaches, trouble sleeping) started around age 12 or 13, but she was diagnosed with PCOS at the time (around 2018). It may also be important to note that she got her HPV vaccine around this time, which may have triggered the POTS according to an article I read about vaccines and autoimmune responses. Her POTS symptoms worsened after getting COVID in 2021; she was diagnosed with gastroparesis soon after. However, it wasn’t until this year that she was finally diagnosed with POTS. She’ll see a neurologist later this month. I hope this information helps someone connect their dots (possible autoimmune to POTS) and maybe, eventually, a cause/treatment for POTS can be found.
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