Hi has anyone experienced pots where they were UNABLE TO LAY DOWN AT ALL? If or when I do I get:
severe burning in my chest(not like gerd or heartburn), arms, neck, and sometimes face, severe anxiety and panic attacks, bad joint pain and sometimes muscle pain, vision changes, tremors, shaking, flushing, unstable high BP.
I also feel like my body will shut down if I lay down or most severe restless leg for my chest, arms, etc. No burning below my waist.
If I am able to lay down I can only lay on my right side or all of the symptoms start.
This is worst at Night. No sleep.
I haven't found anything on the internet that has lead me to any answers even with rare diseases.
The only thing close I found was adrenaline dumping causes you to be restless.
Although some of these things I now feel even when sitting up and standing it's much worse when laying down.
These symptoms are all worsening. It's truly unbearable and I haven't really slept since the first of October.
I was recently diagnosed with hyperandrenergic pots and MCAS. I was diagnosed with POTs years back but due to medication intolerances or side effects, unable to take pots medications for management.
I've also developed since October medication intolerances to even meds I've been on for years.
If Anyone knows what this is or has any help or can refer me to someone on here who can help, please do. I'm at my wits end and I won't be able to live much longer if things continue or progress without intervention. I just want my old pots life back.
Thank you ahead of time,
Morgan