StaciF

The logo is due for an update! Insurance is the only reason that I could think of that they wouldn’t at least fill my prescriptions. I’ve spent a good part of the day reading reviews for electrophysiologists. Hopefully the next one will be a better fit.

Thank you all. I’m actually not new to the forum at all. I was diagnosed forever ago, in 2005. I got locked out of my original account but was a very active volunteer many years ago when Michelle was still running things. I actually created the DINET logo, designed the newsletter etc. @MomtoGiuliana, I don’t know if you remember me. We did move in April and unfortunately even after talking to multiple doctors, the only person who is recommended is still Jill Schofield. I’m on long term disability and SSDI, so seeing a doctor that doesn’t take insurance and charges $2000 just to walk in the door is not feasible. At this point I know more than 9/10 doctors that I have seen. I also know not to expect anyone to have new ideas for me, which is ok, as I have a very complex case and I’m happy to have someone that can just be my maintenance doctor, ie., refill my prescriptions, order any necessary labs and be someone that I could call in an emergency. However after a very disappointing appointment today with a cardiologist where I was told told me they can see me but cannot prescribe any of my meds that I am on for off-label use, which is most of them, and won’t even prescribe infusions, I am sticking with Dr. Grubb and will continue to see him once a year. It’s absolutely worth the travel. The doctors I have seen here are nice, they just don’t have the knowledge that I need. @pistol, I did look up Dr. Viswanathan, but I can’t find anything about him treating POTS patients. I am going to find out if he takes my insurance and if he is taking new patients, it’s worth a shot to drive out there. Thanks again for the suggestions!

Can you please send me the name of the doctor you see. I am brand new to Ft. Collins, and although I see and will continue to see Dr. Grubb, I need someone local for emergencies. So far I have seen a local cardiologist and a local “Dysautonomia specialist” nurse practitioner… both very nice but both told me that they cannot prescribe any medications for me that are used for off label purposes. I have a very complicated, medication resistant case so 4 of my meds they won’t prescribe. They won’t even prescribe my infusions! If you have PCP in the area that you recommend and a gyn, please send that over too. Thank you!!!!

PS. I searched the forum archives and it looks like anyone else that was looking for doctors in the area hit a dead end. I’m really hoping for better results! 🤞🏻

I will be moving from OH to Colorado in a few months. We will be living somewhere in the Ft. Collin’s/Loveland/Denver area. I currently see Dr. Grubb as my main doctor. I will likely continue to see him but only once a year. Does anyone live in the area and have recommendations for doctors? I need a PCP, neurologist, rheumatologist, cardiologist/Dysautonomia specialist and gynecologist. I also need a facility to do my weekly infusions. The only doctor listed on the physicians list does not take any insurance. I’m on disability so that’s not an option. Thanks!